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IgAN Awareness Day 2025
On May 14th, NephCure is proud to recognize IgAN Awareness Day, a day dedicated to shining a light on IgA nephropathy (IgAN), a rare kidney disease that causes inflammation in the kidney’s filtering units and can ultimately lead to kidney failure.
For the first time ever, there are FDA-approved treatments that may help preserve kidney function y prevent the need for dialysis or transplant.
The time to be proactive is now. Join NephCure on May 14th at 7pm ET for a town hall sharing the tools, resources, and expert connections to help you take charge of your health.
Register now
El camino hacia la IgAN puede ser difícil
Escuche las convincentes historias de cuatro pacientes con nefropatía por IgA de diversos orígenes y estilos de vida que han enfrentado los desafíos de esta afección.
Sus experiencias resaltan la resiliencia, las dificultades y los triunfos que conlleva el manejo de una enfermedad renal poco común.
A través de sus voces, obtenemos una comprensión más profunda de lo que significa vivir con IgAN y la importancia de la concientización, el apoyo y la investigación para mejorar las vidas de los afectados.
What is IgA Nephropathy?
IgA Nephropathy (IgAN) is a kidney disease in which Immunoglobulin A (IgA) builds up in the kidney. IgA is a protein in the blood and is also part of the immune system. Excess IgA can cause inflammation in the kidney and over time, this leads to scarring in the kidney tissue. The severity of kidney disease caused by IgAN varies from person to person. As IgAN progresses, it reduces the kidneys’ ability to filter waste from the blood.
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Involucrarse
Spread the word about IgAN Awareness Day! Share our downloadable graphics on your social media and use your voice to raise awareness. Be sure to check out the IgAN Awareness Day Toolkit—it’s packed with templates and tips to make posting easy and impactful. Don’t forget to use #NephCureIgAN and tag @NephCure in your posts!
Download toolkitAsamblea pública del Día de Concientización sobre IgAN
Listen to this insightful and empowering town hall dedicated to IgAN patient empowerment, as we spread awareness about IgA Nephropathy through heartfelt patient stories and the latest updates in research and treatment options.
Featured speakers include Dr. Ankana Daga, Pediatric Nephrologist at Boston Children’s Hospital, and Becca and Bria Garcia, a mother-daughter duo sharing their journey as an IgAN teen patient and caregiver.
register today
Why This Matters Now
Until recently, people living with IgAN had no approved treatment options. Now, with four FDA-approved therapies available that may slow progression and protect your kidneys, it’s more important than ever to get informed, get connected, and get the best possible care.
– FABHALTA (iptacopan) – Approved for C3G and IgAN
– FILSPARI (esparsentán) – Approved for IgAN
– TARPEYO (budesonide) – Approved for IgAN
– VANRAFIA (atrasentan) – Approved for IgAN
These treatment options, each with different mechanisms of action, allow patients and their care teams to take a more personalized approach to managing this disease.
Su guía esencial para abordar la nefropatía por IgA
Empodérese con el completo Manual para pacientes con nefropatía por IgA de NephCure, un recurso imprescindible para cualquier persona con diagnóstico de nefropatía por IgA. Esta guía de varias páginas está diseñada para ayudarlo a comprender cada aspecto de su proceso, desde el diagnóstico hasta las opciones de tratamiento, consejos sobre el estilo de vida y preguntas cruciales para hacerle a su médico.
No se pierda esta valiosa herramienta que puede marcar la diferencia en el manejo de su enfermedad renal poco común. ¡Simplemente complete el formulario para descargar su copia gratuita y dé el primer paso para tomar el control de su salud hoy mismo!
Obtenga su manual gratuito
Spreading Awareness for IgAN
This year’s Día de Concientización sobre IgAN shines a spotlight on the real stories, urgent needs, and growing momentum in research and advocacy for the IgAN community. Whether you’re a patient, caregiver, healthcare provider, or ally, your voice can help amplify this important cause. Read the full press release and learn how we’re making an impact together.
Thank You to Our IgAN Awareness Day 2025 Sponsors
