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IgAN Awareness Day 2025
On May 14th, NephCure is proud to recognize IgAN Awareness Day, a day dedicated to shining a light on IgA nephropathy (IgAN), a rare kidney disease that causes inflammation in the kidney’s filtering units and can ultimately lead to kidney failure.
For the first time ever, there are FDA-approved treatments that may help preserve kidney function and prevent the need for dialysis or transplant.
The time to be proactive is now. Join NephCure on May 14th at 7pm ET for a town hall sharing the tools, resources, and expert connections to help you take charge of your health.
Register now
The IgAN Journey Can be a Difficult One
Hear the compelling stories of four IgA Nephropathy patients from various backgrounds and lifestyles who have navigated the challenges of this condition.
Their experiences highlight the resilience, difficulties, and triumphs that come with managing a rare kidney disease.
Through their voices, we gain a deeper understanding of what it means to live with IgAN, and the importance of awareness, support, and research in improving the lives of those affected.
What is IgA Nephropathy?
IgA Nephropathy (IgAN) is a kidney disease in which Immunoglobulin A (IgA) builds up in the kidney. IgA is a protein in the blood and is also part of the immune system. Excess IgA can cause inflammation in the kidney and over time, this leads to scarring in the kidney tissue. The severity of kidney disease caused by IgAN varies from person to person. As IgAN progresses, it reduces the kidneys’ ability to filter waste from the blood.
Learn more
Get Involved
Spread the word about IgAN Awareness Day! Share our downloadable graphics on your social media and use your voice to raise awareness. Be sure to check out the IgAN Awareness Day Toolkit—it’s packed with templates and tips to make posting easy and impactful. Don’t forget to use #NephCureIgAN and tag @NephCure in your posts!
Download toolkitIgAN Awareness Day Town Hall
Listen to this insightful and empowering town hall dedicated to IgAN patient empowerment, as we spread awareness about IgA Nephropathy through heartfelt patient stories and the latest updates in research and treatment options.
Featured speakers include Dr. Ankana Daga, Pediatric Nephrologist at Boston Children’s Hospital, and Becca and Bria Garcia, a mother-daughter duo sharing their journey as an IgAN teen patient and caregiver.
register today
Why This Matters Now
Until recently, people living with IgAN had no approved treatment options. Now, with four FDA-approved therapies available that may slow progression and protect your kidneys, it’s more important than ever to get informed, get connected, and get the best possible care.
– FABHALTA (iptacopan) – Approved for C3G and IgAN
– FILSPARI (sparsentan) – Approved for IgAN
– TARPEYO (budesonide) – Approved for IgAN
– VANRAFIA (atrasentan) – Approved for IgAN
These treatment options, each with different mechanisms of action, allow patients and their care teams to take a more personalized approach to managing this disease.
Your Essential Guide to Navigating IgA Nephropathy
Empower yourself with NephCure’s comprehensive IgAN Patient Handbook—a must-have resource for anyone diagnosed with IgA Nephropathy. This multi-page guide is designed to help you understand every aspect of your journey, from diagnosis to treatment options, lifestyle tips, and crucial questions to ask your doctor.
Don’t miss out on this valuable tool that can make all the difference in managing your rare kidney disease. Simply fill out the form to download your free copy and take the first step toward taking control of your health today!
Get Your Free Handbook
Spreading Awareness for IgAN
This year’s IgAN Awareness Day shines a spotlight on the real stories, urgent needs, and growing momentum in research and advocacy for the IgAN community. Whether you’re a patient, caregiver, healthcare provider, or ally, your voice can help amplify this important cause. Read the full press release and learn how we’re making an impact together.
Thank You to Our IgAN Awareness Day 2025 Sponsors
