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The IgAN Alliance
Improving Lives Through IgA Nephropathy Awareness and Care
What is the IgAN Alliance?
The IgAN Alliance is a group of advocacy organizations, industry partners, people impacted by IgA Nephropathy (IgAN), and healthcare professionals working together to improve the journey to diagnosis and treatment for those living with IgAN.
Our Mission: Advancing Early Diagnosis and Better Outcomes for IgAN
The IgAN Alliance was newly formed in 2025 by NephCure to be an advocating voice for the community in helping people reach an accurate diagnosis sooner. Earlier diagnosis is critical in properly managingcare and understanding the best treatment plan.
The IgAN Alliance aims to address the challenges faced by people living with IgAN by:
Educating individuals, families, and physicians to approach IgAN diagnoses and care plans with urgency
Sharing the most innovative methods to treat and manage IgAN
Providing helpful information to individuals and families about receiving treatment, support, and assistance
Welcome to the IgAN Alliance
The IgAN Alliance was newly formed in 2025 by NephCure to be an advocating voice for the community in helping people reach an accurate diagnosis sooner. Earlier diagnosis is critical in properly managing care and understanding the best treatment plan.
The Current State of IgA Nephropathy (IgAN) Care
People living with IgAN commonly experience long delays in diagnosis and, therefore, take longer to receive treatment. Efficient and timely diagnosis is crucial to receiving a treatment plan that could slow the progression of their condition.
The impact of delayed diagnosis:
• 1/3 of people living with IgAN with less than 1g of protein experience end stage kidney disease (ESKD) in 10 years
• 1/2 of people living with IgAN will progress to ESKD in their lifetime (mean age 48)
• Many people do not have treatment plans that are best suited for their individual needs or lifestyle
Get Involved
Here’s how you can get involved in the IgAN Alliance
NephCure Action Network (NCAN)
By joining this coalition, you’ll be invited to attend various educational opportunities to learn how to effectively fight for rare kidney disease (RKD) patients, stay informed on our latest advocacy work, and receive time-sensitive action alerts for opportunities to raise your voice and help policymakers understand what’s important to those directly impacted by RKD.
Rare Kidneys on the Hill Day
Rare Kidneys on the Hill Day is an opportunity for advocates to raise awareness about RKD and to make their voices heard by their members of Congress on issues that impact their lives. Anyone impacted by RKD is invited to join us – patients, caregivers, physicians, and researchers are welcome!
Other Opportunities:
Have questions about the IgAN Alliance?
Reach out to our team by emailing IgANAlliance@nephcure.org
Sponsors
We would like to extend our sincere gratitude to our sponsors. Thank you for your commitment and dedication to our cause.
