NephCure understands that people affected by rare kidney diseases (RKD) face unique challenges, and that there aren’t many options for dedicated services for this community. We are committed to making a positive impact by supporting individuals at every step of their RKD journey. Living with RKD can be complicated, but our goal is to give people the tools they need to make them feel empowered and uplifted. We want to create a sense of resilience and community that goes beyond the boundaries of conventional assistance.

NephCure is here to stand by individuals through our online community, social services, virtual support groups, and other helpful of resources. We want to make sure that no one feels alone while dealing with the difficulties of RKD. NephCure is dedicated to empowering, connecting and uplifting our community.

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Join NephCure’s Online Patient Community

Ask questions, connect with others, and share experiences with those who truly understand. Our online community is here to support you in a way that’s different from regular social media — be part of a group that understands what you’re going through. Sign up now to be part of this exclusive online place for everyone affected by RKD.

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Discover Patient Navigation Services

Designed to support individuals and families dealing with RKD, NephCure provides specialized support in helping you navigate through healthcare challenges. From managing mental health to figuring out issues with insurance, we’re here for you.

Get Support

Attend a Virtual Support Group

Designed for every stage of your RKD journey, find a safe and supportive space to connect with others who share similar challenges. Whether you’re a parent, teen, adult, or grandparent impacted by rare kidney diseases, our monthly virtual support groups provide understanding, encouragement, and a change to share experiences.

Join a Support Group

Search the Resource Hub

Explore NephCure’s Resource Hub – your one-stop spot for helpful info! Check out resources on diet, education, FAQs, and more. Dive in and find the tools to understand your rare kidney disease journey better.

Discover our Resources

You Are Not Alone in Your Journey with Rare Kidney Disease.

Share Your Story

Your story matters. Share your journey with rare kidney disease and inspire others on their path towards hope and resilience.

Explore RKD Patient Stories

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Find Your NephCure Specialist Today

It is important to work with a nephrologist who specializes in RKD and can provide personalized advice based on your individual health needs and changes in available treatments. NephCure has a curated list of NephCure Specialists nationwide ready to help you.


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