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NephCure

For Rare Kidney Disease

Pediatric Patients

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Adult Patients

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Health Care Professionals

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Kidney Disease in Communities of Color

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We fund research and provide support and education to people affected by rare, protein-spilling kidney diseases.

More than 1 in 7 U.S. adults have chronic kidney disease, but up to 90% are unaware that they are sick. Although protein-spilling kidney diseases are individually rare, together they are a leading cause of kidney failure. When NephCure was formed in 2000, there was little research into Nephrotic Syndrome and few options for patients.

$40M+

NephCure funds invested in research to date.

50+

new potential treatments being tested for patients.

160+

NephCure Specialists nationwide providing expert care.

40k

patients and families reached yearly through our programs.

Patient Stories

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NephCure Champion Spotlight: Paul Billedo

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NephCure Champion Spotlight: Anthony Pisa

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2023 Rare Kidneys on the Hill Day Success, Largest Event in Organization History

2023 Rare Kidneys on the Hill Day Success, Largest Event in Organization History

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NephCure to Host Largest Rare Kidneys on the Hill Day

NephCure to Host Largest Rare Kidneys on the Hill Day

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Get Involved

Now is a pivotal moment for Nephrotic Syndrome patients. Take action to help shape the future of treatment and care for rare kidney disease.

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