Patient Stories

From California to Sydney and everywhere in between, your tales of courage, optimism and perseverance resonate with us. But, more importantly, they give hope to other people impacted by FSGS and Nephrotic Syndrome.

We’re here for everyone impacted by these diseases no matter your age, gender or where you are in the journey. Are you a newly-diagnosed adult patient? Perhaps you’re the parent of a young child waiting for a transplant? Maybe you’re a teen in remission and feeling good? No matter who you are or where you live, we invite you to share your story and help others feel less alone, more inspired and more empowered in their journey.

share your story

Nephrotic Syndrome

Ayeza B.

My daughter’s name is Ayeza. She was diagnosed with CNS at only 1.5 months old...

Focal Segmental Glomerulosclerosis (FSGS)

Salina G.

Like many other people around the globe, spring of 2020 changed my life forever ...

Nephrotic Syndrome

Sawyer R.

Sawyer’s journey began at the tender age of 4, marked by distressing symptoms ...

Focal Segmental Glomerulosclerosis (FSGS)

Imani M.

In 2016, at the age of 23, Imani Mintz received a diagnosis of FSGS. Following a...

Membranous Nephropathy (MN)

Joe H.

My name is Joe Hawkins and I am 59 years old. I am a U.S. Navy veteran and settl...

Membranous Nephropathy (MN)

Dan H.

Dan is from Baltimore, MD. Who is living in Florida and served in the US NAVY fr...

Membranous Nephropathy (MN)

Seferiana D.

Seferiana Day was diagnosed with Primary Membranous Nephropathy and Stage 1 Chro...

Membranous Nephropathy (MN)

Eric H.

Eric is a 54-year-old attorney, musician, husband and father of two teenagers fr...

C3 Glomerulopathy (MPGN)

Chase G.

In 2009, Chase Gallagher, at the age of 8, was diagnosed with Type III MPGN now ...

C3 Glomerulopathy (MPGN)

Lindsey F.

Lindsey Fuller has a rare form of hereditary C3G. Her grandfather died of renal ...

Focal Segmental Glomerulosclerosis (FSGS)

Teleya B.

I have APOL 1-Associated FSGS. I was diagnosed when I was 14. For 20 years, I’...

Focal Segmental Glomerulosclerosis (FSGS)

Jorden A.

In 2022, at the age of 24, Jorden Albright-Henighan was diagnosed with chronic k...

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