Online Patient Community

Connect, Support, and Learn Together!

We are thrilled to announce the upcoming re-launch of NephCure’s new online community! Designed exclusively for patients with rare protein-spilling kidney diseases, their care partners, and family members, this innovative platform aims to foster a strong sense of community while providing essential support, educational materials, and valuable resources. 

Online portal

Key Features

Our team is diligently working on the development of this platform and we can’t wait to bring it to the NephCure Community. Stay tuned for updates on the launch date and be ready to experience a supportive and enriching online environment tailored to your unique needs. 

Community Support

Connect with others who understand the unique challenges you face. Share experiences, offer support, and find comfort in a community that truly understands your journey. 

Educational Materials

Access a wealth of educational resources tailored to your specific condition. Stay informed about the latest advancements in research, treatment options, and lifestyle management. 

Resource Hub

Explore a comprehensive resource hub featuring articles, videos, and expert insights. Gain knowledge that empowers you to navigate your rare kidney disease journey with confidence. 


Join groups based on your specific condition or interests. Engage in discussions, ask questions, and build meaningful connections with others facing similar experiences. 

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Get Involved

As we prepare for the launch, we invite you to join our mailing list to receive exclusive updates, sneak peeks, and early access opportunities. Together, let’s build a community that empowers, uplifts, and supports each other on their rare kidney disease journey! 


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