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Managing RKD

With continued growth in clinical trials and discoveries, the options for managing rare kidney disease (RKD) keeps growing, offering new hope for effective solutions— and one day a cure. There are different ways to help manage RKD. Though it can be challenging to find the right medication to treat your symptoms, there are new treatments that can help.  With these new treatments, there is more hope and better options for managing RKD.

Explore Treatment Options That Might Be Right For You 

Examples of new treatment options include SGLT2 inhibitors, and newly FDA approved treatments, like FILSPARI and TARPEYO. 

Discover Treatment Options

Find Your NephCure Specialist Today

It is important to work with a nephrologist who specializes in RKD and can provide personalized advice based on your individual health needs and changes in available treatments. NephCure has a curated list of NephCure Specialists nationwide ready to help you.  

Find a Nephcure specialist near you

Discover Clinical Trials Near You

From accessing cutting-edge treatments to being part of groundbreaking research, discover the benefits that can make a real difference. Learn more about clinical trials currently taking place, and find opportunities near you.

Search Trial Opportunities

Nourish Your Body and Mind

In addition to following the medication plan agreed upon by you and your nephrologist, managing RKD also includes: eating healthy foods, staying active, not smoking, and getting mental health support. Your nephrologist will work with you to figure out the best treatment plan to help keep your kidneys as healthy as possible.

Diet and Nutrition

Learn more about the power of a kidney-healthy diet and discover just how delicious it can be with NephCure’s Low-Sodium, Kidney-Friendly Cookbook! Packed with tasty recipes that are low in salt, fat, and cholesterol, and full of fresh fruits and veggies.

Mental Health

Start talking about mental health early in your RKD journey with NephCure. Early discussions empower you with coping strategies, normalize mental health, and reduce stigma.

Considering genetic testing for rare kidney disease?

Talk to your nephrologist if it runs in your family or if treatments aren’t working. Getting approval from insurance can be tricky, but there are options, including free testing programs for people who meet qualifications.

Learn more

Latest Resources

Informational Documents

Patient Empowerment Flyer

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

The History & Innovation of C3G: Patient Summit Seminar with Dr. Corey Cavanaugh

Educational Materials

School Accomodations

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