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Mental Health Patient and Caregiver Panel

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Join NephCure for a mental health-focused patient panel. Hear from five patients and a patient parent affected by rare, protein-spilling kidney diseases about their struggles and the coping strategies they’ve developed throughout their journeys.

Our panel dives deeper into the mental health impacts of living with rare kidney disease and discusses how we can come together as a community to improve resources and support.

Visit our Youtube page

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Nephcure Site Image
Informational Documents

Sparsentan (FILSPARI) for FSGS: FAQs

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

A First for FSGS Patients: What the sparsentan Approval Means for You

Educational Materials

School Accomodations

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