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Newly Diagnosed Parents – Nephrotic Syndrome 101

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Join Dr. Susan Massengill from Levine Children’s Hospital in Charlotte, North Carolina share the basics of nephrotic syndrome.

You will leave this session with a better understanding of nephrotic syndrome, it’s history, how it impacts the kidneys, how the kidney’s impact a patient, and best practices when treating and living with nephrotic syndrome.

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Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Talk to Your Doctor About Your Kidney Health: IgAN

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

IgAN Patient Empowerment | Sean Converse’s Story

Educational Materials

School Accomodations

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