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My daughter’s name is Ayeza. She was diagnosed with CNS at only 1.5 months old. The doctor told us that children with this disease only survive until they are maximum 2.5 years old. Immediately they started her on medications and at the age of 4 she diagnoses kidney disease. And she was referred for dialysis. After 4 months of dialysis, we started her kidney transplant process.
As her father I am in hope that she gets the kidney transplant without augmentation. Once the reflux clears up, I will hopefully be able to donate my kidney to her in the meantime we are praying that there aren’t anymore hurdles.
As her father I decided to donate my kidney to her and luckily it matched. But then another hurdle came when the systoscopy reflux test showed negative results and the hospital in Pakistan refused to do the transplant before augmentation. For 4 years now, she has been dialysis.
I was told augmentation has its complications and medications will have to clear it up with the help of an external tube. She is very weak. As her father I am in hope that she gets the kidney transplant without augmentation. Once the reflux clears up, I will hopefully be able to donate my kidney to her in the meantime we are praying that there aren’t anymore hurdles.
