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FILADELFIA, PA – March 1,2026 – March is National Mes del Riñón, and NephCure is proud to join the global movement to raise awareness about kidney health. NephCure has been squarely focused on rare, protein-spilling kidney diseases (RKD) for the last twenty-six years and is committed to advocating for the many patients and families affected by conditions such as FSGS, IgAN, MN, and other rare, protein-spilling kidney diseases.
NephCure Leverages Kidney Month Campaign to Support New Mission
In January 2026, NephCure announced a new mission that reflects both the extraordinary progress achieved for rare kidney disease and the organization’s vision for the next era of patient support.
For more than 25 years, NephCure has worked alongside patients, caregivers, researchers, physicians, and industry partners to transform the rare kidney disease landscape. When the organization was founded, scientific understanding of these conditions was limited, there were no FDA-approved treatments, and virtually no therapies in development to serve the hundreds of thousands of Americans affected by rare kidney diseases.
Today, that landscape has dramatically changed. NephCure has helped make six FDA-approved treatments possible, supported more than 60 clinical trials, and built a thriving community of over 40,000 families.
However, scientific progress alone is not enough.
Too many families still face delayed diagnoses, limited access to specialists, and systemic barriers that prevent timely access to care and emerging treatments. In response, NephCure has refined its focus and introduced its new mission:
To ensure that all individuals with rare, protein-spilling kidney disease have equitable access to the care and treatments that offer them the best kidney health outcome possible.
Kidney Month Campaign Highlights
NephCure’s Kidney Month campaign is composed of a dedicated Página de inicio del Mes del Riñón, email outreach and a social media campaign that not only explain their new mission but also demonstrates the meaningful steps already underway to bring that mission to life.
The campaign includes:
- Opportunities for patients to share their stories through written or video submissions
- A social media advocacy toolkit encouraging supporters to share messages on their own platforms
- Inspiring Historias de pacientes offering guidance and connection
- A community survey to better understand patient needs
- Information about and registration to Riñones raros en el día de la colina, an advocacy event that connects patients directly with Members of Congress to advance health equity through meaningful legislation
- Brand education about NephCure, including the 2025 Impact Report detailing NephCure’s programs and research investments
- Volunteer opportunities
- A curated collection of educational tools designed to expand access to care
- Kidney Month merchandise, including hats and pins that promote grassroots awareness
NephCure invites individuals, organizations, and advocates to help amplify the voices of those living with rare kidney diseases. By raising awareness, we can accelerate progress toward better treatment access and improved quality of life for all who are affected.
Show your support this Kidney Month by purchasing a Kidney Month pin and sharing your advocacy on social media using our downloadable toolkit by clicking aquí.
Corporate Sponsors and Partners
Thank you to our NephCure Corporate Members who are our valued partners for Kidney Month and World Kidney Day Campaigns. Their generous support enables NephCure to develop programs, events and educational resources to pursue our mission of ensuring access to the care and treatments that offer patients the best kidney health outcome possible.
Thank you to: Travere Therapeutics, Boehringer-Ingelheim, Novartis, Otsuka, Vertex Pharmaceuticals, Apellis Pharmaceuticals, Alexion, Amicus Therapeutics, AstraZeneca, Calliditas Therapeutics, and Vera Therapeutics.
Additionally, NephCure is partnering with Xtrema Ceramic Cookware, and PatientsLikeMe to amplify the Kidney Month campaign across social media.
Acerca de NephCure
NephCure’s mission is to ensure that all individuals with rare, protein-spilling kidney disease have equitable access to the care and treatments that offer them the best kidney health outcome possible. Founded in 2000 by a group of committed patient parents, NephCure has invested more than $40 million in kidney disease research and helped create a landscape where there are now new treatments and more than 60 interventional drug trials for rare kidney diseases. NephCure is a U.S. tax exempt 501(c)(3) public charity.
