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Celebre el mes del riñón este marzo
Spread the word: we deserve equitable care for every rare kidney disease
March is National Kidney Month, and we invite you to raise awareness about rare kidney disease. For too long, these conditions have been underrepresented, with advancements driven largely by the courage and advocacy of patients and families themselves. This March, we invite you to add your voice to the cause. Together, we can ensure that all individuals with rare, protein-spilling kidney disease have equitable access to the care and treatments that offer them the best kidney health outcome possible.
Access to Equitable Kidney Care Starts Here
For more than 25 years, NephCure has worked alongside patients, caregivers, researchers, industry partners, and physicians to transform the rare kidney disease landscape. When NephCure was founded, there was little scientific understanding of rare kidney disease, no FDA-approved treatments, and almost no therapies in development.
Today, that story is changing. Together, this community has helped make six FDA-approved treatments possible, supported more than 60 clinical trials, and built a network of over 40,000 families who have found knowledge, hope, and connection.
As scientific breakthroughs accelerate, NephCure recognizes FDA-approved treatments are not the finish line, but rather the starting line. Too many families still face barriers: late diagnosis, difficulty finding expert physicians, and inequities that delay or block access to care and new treatments. To meet this moment, NephCure introduces its new mission statement:
Our New Mission:
To ensure that all individuals with rare, protein-spilling kidney disease have equitable access to the care and treatments that offer them the best kidney health outcome possible.
Tu historia importa
Sharing your experience helps others feel less alone and builds greater awareness and understanding of rare kidney diseases. We feature patient stories across our social media, newsletter, and website to educate, inspire, and connect our community.
Patient Voices
We Want your Feedback
NephCure is launching a short patient survey to better understand the needs of our community. We want to make sure that we are providing the right tools to the rare kidney so that patients and families have the support, information, and resources they need.
During the month of March, the first 50 people to complete the survey will receive a free Kidney Month pin.
By sharing your voice, you help NephCure amplify the real patient experience in rare kidney disease, identify the biggest unmet needs in the community, guide research priorities and advocacy efforts, and improve education and support for patients and families.
complete the survey
Advocate With us on the Hill
This Kidney Month, use your voice to drive meaningful change for people living with kidney disease by joining us in Washington, DC for Rare Kidneys on the Hill Day.
Rare Kidneys on the Hill Day is an opportunity for advocates to raise awareness about rare kidney disease and to make their voices heard by their members of Congress on issues that impact their lives. Anyone impacted by RKD is invited to join us – patients, caregivers, physicians, and researchers are welcome!
NephCure’s 2025 Impact
Our 2025 impact report highlights significant strides in research advancement, expanded clinical trial access, and enhanced patient support for rare protein-spilling kidney diseases. It reflects the organization’s growing specialist network and continued progress toward developing better treatments and ultimately finding a cure.
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Make a Difference This Kidney Month
Want to do more than raise awareness? Become a NephCure volunteer and help strengthen our rare kidney disease community. Whether you’re passionate about supporting patients, sharing your story with researchers and policy leaders, advocating for change, or helping at events, there’s a meaningful way for you to get involved. Volunteers play a vital role in spreading hope, building connection, and driving progress for people and families affected by rare kidney disease. This Kidney Month, your time and voice can make an even bigger impact.
become a volunteerResources That Expand your Access to Care
Thank You to Our 2026 Kidney Month Sponsors
Thank you to our NephCure Corporate Members who are our valued partners for Kidney Month and World Kidney Day Campaigns. Their generous support enables NephCure to develop programs, events and educational resources to pursue our mission of ensuring access to the care and treatments that offer patients the best kidney health outcome possible.
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