Rival Game Relay Raises Money and Awareness for NephCure
Mike and Kate Maurer are runners who came up with an inspired idea and organized a great event for a great cause, but they’re more than that: they’re parents to … Read more
Showing results for isu fsgs
Mike and Kate Maurer are runners who came up with an inspired idea and organized a great event for a great cause, but they’re more than that: they’re parents to … Read more
On Friday, June 6, 2014, a luncheon/meet-up designed just for teens and ‘tweens and their families was held at Nemours/A. I. duPont Hospital in Wilmington, Delaware. It was the first … Read more
Many thanks to Health Economist and Influencer Jane Sarasohn-Kahn for her profile of NephCure Kidney International on her wildly popular blog, Health Populi. We had a great time discussing the … Read more
PatientCrossroads Launches New Patient Registries The new rare-disease registries arose from the NIH Global Rare Diseases Registry (GRDR) pilot program San Mateo, Calif. (PRWEB) September 04, 2014 PatientCrossroads announces the … Read more
On February 23, 2014, aka Rare Disease Day, Lisa Cimino – a member of the NephCure family and mother to FSGS patient Brianna – shared her story and talked about … Read more
Grand Rapids, MI – The NephCure Kidney Walk returns for the 4th year to the Grand Rapids area, Sunday, October 18th. The walk brings together area patients, friends, and family dedicated … Read more
FOR IMMEDIATE RELEASE Contact Information: NephCure Kidney International Erin Russell erussell@nephcure.org NephCure Kidney International and Local NY Teenager Sydney Levine Launch MARCHing to Awareness {Melville, NY, March 2, 2016} – … Read more
(KING OF PRUSSIA, PA- FEB. 19, 2019)- NephCure Kidney International (NephCure), a not-for-profit organization focused on accelerating research for effective treatments for rare forms of Nephrotic Syndrome, announced today the … Read more