On June 10th, NephCure and its community came together to recognize FSGS Awareness Day—a day dedicated to shining a light on Focal Segmental Glomerulosclerosis (FSGS), a rare kidney disease that causes scarring in the kidney’s and can ultimately lead to kidney failure.
Thank you to everyone who participated, shared resources, and helped amplify this important message. To learn more about FSGS, visit NephCure.org!
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On May 14th, NephCure and its community came together to recognize IgAN Awareness Day—a day dedicated to shining a light on IgA nephropathy (IgAN), a rare kidney disease that causes inflammation in the kidney’s filtering units and can ultimately lead to kidney failure. Thank you to everyone who participated, shared resources, and helped amplify this important message. To learn more about IgAN, visit NephCure.org!
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This video explores Apolipoprotein L1 (APOL1), a rare kidney disease that impacts both men and women of any age.
Learn about:
– What is APOL1 and how it impacts patients
– Latest research and treatment options
– Personal stories from APOL1 warriors and more!
Whether you’re living with APOL1, know someone who is, or want to learn more about this often-overlooked condition, this video is for you. Help us spread awareness and hope for those affected by Apolipoprotein L1.
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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.
D. Wadhwani, nephrologist, presented a session surrounding the new landscape with RKD.
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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.
Dr. Yasir Aslam Qazi, nephrologist and NephCure Specialist, presented a session surrounding what is on the horizon for rare kidney disease and treatment.
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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.
Dr. Sreedhar Mandayam, nephrologist and NephCure Specialist, presented a session surrounding how to improve outcomes through relationships with patient providers.
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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.
Britta Dornan, NephCure’s Executive Director of Strategic Relations, hosted a panel with Texas Senator Kelly Hancock, Mary Baliker, Lisa Cimino, and Kimberly Queen surrounding their journey with RKD and how to turn their adversity from their disease into actionable cause.
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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.
Jennifer Moore, a Masters Level Registered Dietitian, presented a second session surrounding treating inflammation through diet for kidney disease and how to treat it.
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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.
Jennifer Moore, a Masters Level Registered Dietitian, presented a session surrounding a plant-based diet for kidney disease and how to manage it.
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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.
Dr. Corey Cavanaugh, nephrologist and NephCure Specialist, presented an educational session surrounding the history of C3G, innovations that are coming, and how to best prepare.
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This video explores IgA Nephropathy (IgAN), a rare kidney disease that impacts both men and women of any age.
Learn about:
– What is IgAN and how it impacts patients
– Latest research and treatment options
– Personal stories from IgAN warriors and more!
Whether you’re living with IgAN, know someone who is, or want to learn more about this often-overlooked condition, this video is for you. Help us spread awareness and hope for those affected by IgA Nephropathy.
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Meet Jennifer Reil, a patient who was diagnosed with IgA Nephropathy (or commonly known as IgAN, or Berger’s Disease). IgA nephropathy (IgAN) is a rare kidney disease that causes inflammation in the kidney’s filtering units, which can result in kidney damage and may lead to kidney failure. Hear the compelling story of Jennifer Reil, who has faced challenges and built resilience in order to navigate this condition.
To learn more about IgAN and see important resources that can support you or a loved one, visit our IgAN Kidney Disease page.
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