and learn why prednisone is a double-edged sword for many patients with protein-spilling kidney diseases. While we know Prednisone may be helpful to some, this treatment option comes with many unpleasant side effects.
Listen to Dr. Julie Ingelfinger, the author of Coping with Prednisone (and other cortisone-related medicines), as she discusses the only book for patients on coping with the symptoms of Prednisone.
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And learn about the process of transitioning your child to adult nephrology. In this video, Dr. Roshan George explains why this transition should start years before it happens.
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And learn from an expert of kidney biopsies, Dr. Chris Larsen from Arkana Labs. Dr. Larsen talks about everything from biopsy to diagnosis– and why the person who reads your biopsy is so important.
You’ll also get an inside and behind the scenes look of Arkanas Labs!
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Dr. Larry Beck from Boston University for an informative session regarding the latest advancements in MN, including new treatment guidelines. Watch this video to learn about the quickly changing Membranous Nephropathy landscape.
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Join Dr. Susan Massengill from Levine Children’s Hospital in Charlotte, North Carolina share the basics of nephrotic syndrome.
You will leave this session with a better understanding of nephrotic syndrome, it’s history, how it impacts the kidneys, how the kidney’s impact a patient, and best practices when treating and living with nephrotic syndrome.
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Dr. Vimal Derebail from the University of North Carolina as share trends, new innovations, and research around dialysis and transplant for those with rare protein-spilling kidney diseases.
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Join Dr. Kathrine Twombley from Medical University of South Carolina share trends, new innovations and research around dialysis and transplant for those with rare protein spilling kidney diseases.
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First-hand from patients, a caregiver, a doctor, and industry representatives about participating in, coordinating, and designing a clinical trial.
This moderated discussion provides in-depth information on what clinical trial participation is like and considerations to think about before you enroll.
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Caitlin Dwyer, a Licensed Clinical Social Worker, dives into common issues of depression, anxiety, event-related stress, and cognition, as well as provide tools and resources for support, self-care, and how to find a mental health provider.
This talk highlights the importance of mental health and the steps you can take to positively impact your quality of life.
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Dr. Shivam Joshi, Clinical Professor and Nephrologist at NYU Langone, discusses the principles of plant-based diets, dietary protein, and how your kidneys may respond to this type of nutrition. He shares research and significant data on plant-based diets and how taking control of your diet may slow the progression of kidney disease.
Chef Duane Sunwold, a professional chef and culinary arts instructor in Spokane and North Idaho, joins Dr. Joshi to share his journey with FSGS and how he took control of his disease through a plant-based diet. He also shares tips and tricks on how to start following a plant-based diet, and resources for cookbooks, recipes, and some of his favorite websites that he uses both personally and professionally.
While Dr. Joshi provides the scientific data on how a plant-based diet can change the trajectory of your disease, Chef Duane offers practical and real-life recommendations on how you can start incorporating more plants into your diet — without losing flavor and variety!
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Dr. Kirk Campbell, Professor of Medicine and Director of the Nephrology Fellowship program at Mount Sinai, reviews important biomarkers in kidney diseases and explain how they help us determine our kidney function.
Dr. Campbell also discusses new research that may impact how doctors are looking at rare kidney diseases and reviews the treatment options available to patients.
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Join NephCure for a mental health-focused patient panel. Hear from five patients and a patient parent affected by rare, protein-spilling kidney diseases about their struggles and the coping strategies they’ve developed throughout their journeys.
Our panel dives deeper into the mental health impacts of living with rare kidney disease and discusses how we can come together as a community to improve resources and support.
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