The U.S. Food and Drug Administration (FDA) has been reviewing an application for FILSPARI (sparsentan) for the treatment of focal segmental glomerulosclerosis (FSGS). The initial date for the FDA to make a decision on this drug was January 13, 2026. On that date, the FDA issued what is called a major amendment, which means the review process will take more time. NephCure’s virtual townhall answered key questions about this decision and what it means for the FSGS community.
This NephCure U webinar, hosted by Dr. Carla Nester, gives us an update on C3G (a collective name for a group of rare kidney diseases that involve a specific part of your immune system).
Dr. Nester also explains more about the current treatment options for C3G and updates us on the clinical trials available.
Join NephCure for a mental health-focused patient panel. Hear from five patients and a patient parent affected by rare, protein-spilling kidney diseases about their struggles and the coping strategies they’ve developed throughout their journeys.
Our panel dives deeper into the mental health impacts of living with rare kidney disease and discusses how we can come together as a community to improve resources and support.
Predicting kidney disease progression isn’t easy, but research has shown nephrologists key indicators to look for and track.
Dr. Marva Moxey-Mims, Professor of Pediatrics and Chief of Nephrology at Children’s National Health System, focuses on understanding predictors of rare kidney disease progression, including common biomarkers and their significance in not only disease monitoring, but how they are being used to get a more precise diagnosis.
She also covers genetic testing in pediatric nephrology and provide guidance on if or when you should consider genetic testing for your child.
Genetic testing is changing the face of medicine. It’s no longer an expensive, out-of-reach option in your diagnostic journey! On Thursday, April 13 at 8 p.m. ET, we were joined by expert nephrologist, Dr. Joshua Zaritsky, to discuss genetics in rare kidney disease (RKD). Some of the topics included:
1. How genetic testing can impact your RKD diagnosis
2. How it can change the treatment course of your disease
3. How to affordably and easily access genetic screening for RKD.
First-hand from patients, a caregiver, a doctor, and industry representatives about participating in, coordinating, and designing a clinical trial.
This moderated discussion provides in-depth information on what clinical trial participation is like and considerations to think about before you enroll.
Caitlin Dwyer, a Licensed Clinical Social Worker, dives into common issues of depression, anxiety, event-related stress, and cognition, as well as provide tools and resources for support, self-care, and how to find a mental health provider.
This talk highlights the importance of mental health and the steps you can take to positively impact your quality of life.
Dr. Shivam Joshi, Clinical Professor and Nephrologist at NYU Langone, discusses the principles of plant-based diets, dietary protein, and how your kidneys may respond to this type of nutrition. He shares research and significant data on plant-based diets and how taking control of your diet may slow the progression of kidney disease.
Chef Duane Sunwold, a professional chef and culinary arts instructor in Spokane and North Idaho, joins Dr. Joshi to share his journey with FSGS and how he took control of his disease through a plant-based diet. He also shares tips and tricks on how to start following a plant-based diet, and resources for cookbooks, recipes, and some of his favorite websites that he uses both personally and professionally.
While Dr. Joshi provides the scientific data on how a plant-based diet can change the trajectory of your disease, Chef Duane offers practical and real-life recommendations on how you can start incorporating more plants into your diet — without losing flavor and variety!
Dr. Kirk Campbell, Professor of Medicine and Director of the Nephrology Fellowship program at Mount Sinai, reviews important biomarkers in kidney diseases and explain how they help us determine our kidney function.
Dr. Campbell also discusses new research that may impact how doctors are looking at rare kidney diseases and reviews the treatment options available to patients.
The video features a quick and easy recipe for fish tacos following a kidney-friendly diet. It emphasizes the importance of using ingredients that support kidney health, showcasing step-by-step instructions on preparing the dish.
It includes visuals of fresh fish being seasoned, cooked, and assembled into tacos with fresh toppings, offering a delicious and nutritious meal option for those mindful of their kidney health.
1 Tbsp. canned chipotle pepper like chillis in adobo
1 ½ tsp. chili powder
¼ cup mayonnaise
½ cup sour cream 2 limes, 1 halved and 1 cut into wedge
2 Tbsp. chopped cilantro
1 cup fresh chopped pineapple
1 small red onion
1 jalapeño
2 cloves garlic, minced
1 cup shredded green cabbage
½ cup shredded carrots
8 fresh corn tortillas
Directions:
1. Preheat the oven to 400 ºF. Lightly grease a baking sheet. 2. Season fish with canned chili, chili powder and the squeezed juice of 1/2 a lime. Bake for 15 minutes or until f ish is firm and cooked through. 3. In a mixing bowl, combine mayo, sour cream, squeezed juice of 1/2 a lime, and 1 Tbsp. cilantro. Refrigerate until needed. 4. In another bowl, combine chopped pineapple, onion, jalapeno, lime juice, cilantro and garlic, then refrigerate until needed. 5. Thinly chop cabbage and toss with dressing and shredded carrots. Refrigerate until needed. 6. Remove fish from oven, toast tortillas and make tacos using pico and cabbage slaw.
Follow step-by-step instructions on how to make kidney-friendly chicken nuggets, perfect for focusing on your kidney health. The video guides you through the preparation process, showing you how to season, bread, and bake kidney-healthy chicken nuggets to golden perfection.
Highlighting the use of ingredients that supports a kidney-healthy diet and provides valuable tips on selecting kidney-friendly options. To enhance the meal, the video suggests nutritious side dishes, ensuring a balanced and healthy dining experience for those prioritizing their kidney well-being.
1. Preheat the oven to 400 °F. 2. Cut chicken breast into bite-sized pieces. 3. In a large mixing bowl, combine seasoning, eggs, and chicken. Coat the chicken pieces evenly. 4. Pour bread crumbs into a Ziploc bag, then add chicken and toss until evenly coated. 5. Bake nuggets on a baking sheet sprayed with nonstick cooking spray for 20 minutes or until internal temperature reaches 165 ºF. 6. Serve with homemade honey mustard dipping sauce.
And learn from an expert of kidney biopsies, Dr. Chris Larsen from Arkana Labs. Dr. Larsen talks about everything from biopsy to diagnosis– and why the person who reads your biopsy is so important.
You’ll also get an inside and behind the scenes look of Arkanas Labs!
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