New FDA-Approved Treatment for RKD

The FDA has approved Gazyva® (obinutuzumab) for adults and children ages 2 and older with idiopathic nephrotic syndrome that began in childhood and is frequently relapsing (FRNS) or steroid-dependent (SDNS). More information coming soon. Please visit our Patient Navigation tool for support.

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Transition Care – Pediatric to Adult

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Is your child affected by rare kidney disease? Did you know that the process for transitioning your child to adult nephrology should start years before it ever happens? Dr. Roshan George can help.

As the Director of the Renal Transplant Transition Program at Emory, Dr. George discusses how to navigate this transition.

And learn about the process of transitioning your child to adult nephrology. In this video, Dr. Roshan George explains why this transition should start years before it happens.

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Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Sparsentan (FILSPARI) for FSGS: FAQs

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

Navigating Nutrition in Protein-Spilling Kidney Disease

Educational Materials

School Accomodations

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