BTIG Commissions for Charity Day is Tuesday, April 28, 2015. SUPPORT NEPHCURE KIDNEY INTERNATIONAL on that day by asking your broker to trade through BTIG. Just ask that the trade support NephCure Kidney International. It will not cost you or your broker anything, commissions generated from the trades executed by BTIG on Charity Day are donated to charities nominated by BTIG clients. NKI is one of those charities!
“BTIG Charity Day has grown into a global initiative. As a firm, we are passionate about the success of our annual event and are committed to supporting meaningful causes,” said Steven Starker, Co-Founder of BTIG. Since the event’s inception in 2003, BTIG’s clients, celebrity partners and employees throughout its U.S., London, Hong Kong, Singapore and Sydney offices, have raised more than US$30 million for hundreds of charitable organizations around the world, including over US$5 million from the May 2014 event last year.
“We are always impressed by the number of well deserving organizations that our clients and celebrity partners support and bring to our attention each year. It’s an honor to be a part of an event that makes such a significant impact on improving opportunities for children and others worldwide,“ said Scott Kovalik, Co-Founder of BTIG.
2015 BTIG Charity Day Preview Video: https://vimeo.com/120527307
If you have questions about how to designate NKI as your beneficiary – please call NKI at 610-540-0186 ext. 24.
BTIG is a global financial services firm specializing in institutional trading, investment banking and related brokerage services. With an extensive global footprint and more than 475 employees, BTIG, LLC and its affiliates operate out of 13 cities in North America, Europe and Asia Pacific. BTIG offers execution, expertise and insights for equities, equity derivatives, ETFs, fixed income, futures, commodities, foreign exchange, interest rates, credit, and convertible and preferred securities. The company’s core capabilities include global sales, portfolio, electronic and outsource trading, investment banking, prime brokerage, capital introduction, corporate access, research and strategy, commission management and more. Disclaimer: https://www.btig.com/Disclosures.aspx
Archives for April 2015
Announcing Kidney Health Initiative’s Inaugural Patient and Family Partnership Council Members*
In order to advance KHI’s efforts to improve patient safety and promote the development of the therapies for diseases that affect the kidneys, KHI recently communicated to the membership the opportunity to serve on the inaugural Patient and Family Partnership Council (PFPC).
The established PFPC will assist the Board of Directors and KHI’s various workgroups in providing strategic guidance about how to engage and include patients, their families and care partners in KHI activities, including but not limited to:
1. Advise KHI members regarding patient involvement in their project proposals
2. Outline opportunities for patients to serve once a project has been endorsed
3. Identify patients to serve on project workgroups
4. Collaborate on developing patient centered project(s) to submit for KHI endorsement
The KHI Board of Directors have reviewed the submitted applications of many well-qualified candidates for the Patient and Family Partnership Council and have selected the inaugural members.
1. Ms. Celeste Castillo Lee, Chair and Liaison to KHI Board of Directors (Vasculitis Foundation)
2. Ms. Denise Eilers, BSN, RN (Home Dialyzors United)
3. Mr. Richard D. Fissel (NephCure Kidney International)
4. Mr. Kevin J. Fowler
5. Ms. Terry F. Litchfield
6. Mr. Sam Pederson (American Association of Kidney Patients)
7. Ms. Roberta L. Wager, MSN, RN (American Association of Kidney Patients)
8. Ms. Caroline Wilkie (National Kidney Foundation)
The PFPC will host its first meeting in May in conjunction with the Third Annual KHI Stakeholders Meeting.
*Text provided by the American Society of Nephrology
The most unique aspect of the NephCureKidney Network Patient Registry is that it is governed by a group of patients, patient parents, patient advocates, clinicians, researchers and representatives from industry who work together to ensure that the needs of the NS patient community and the NS research community are met.
Each month this group of 18 individuals meets via conference call to discuss topics focusing on recruitment and retention, patient engagement, data collection, and medical profession engagement. Because each group of stakeholders can voice their perspectives on the call, it is ensured that the NKN registry will remain both patient centered and a valuable tool for the research community.
Want to be involved?
If you are interested, email Joanna Dauber at firstname.lastname@example.org call 610-540-0186 x 36.
Applications will be accepted until April 27th, 2015.
The Patient-Centered Outcomes Research Institute (PCORI) is now accepting Letters of Intent (LOIs) through their latest funding announcement under the Pragmatic Clinical Studies initiative, which is offering up to $90 million in support for projects evaluating the effectiveness of different care options in “real-world” settings. PCORI will provide up to $10 million in total direct costs per study. For the LOI deadline and other key dates associated with the latest pragmatic studies funding opportunity, visit the full funding announcement.
PCORI awarded $64.1 million in February to fund the first five studies selected through this initiative and their Board of Governors will consider another slate of potential awards at its next meeting on Tuesday, April 21.
The Levine family just took great steps to STAND UP & BE COUNTED. Meeting with the Congressman, they took just another step for the best representation and advocation for those with Nephrotic Syndrome and FSGS. Sydney Levine, who recently started a viral social media campaign with the #SUBCselfie project, caught the attention of the Congressman as well as many famous, powerful voices across the country. As a result of the Levine family, who never stop trying to find ways to beat FSGS for son and brother, Matthew, the right people are becoming aware and joining in the fight. The Congressman will be taking this to appropriations on the hill next week!
We know that spring can be extremely busy for everybody, but we wanted to share with you the top 10 reasons why YOU and your family should attend a local Community Cafe Patient Workshop!
REGISTER for one in your area!
THE TOP 10 REASONS TO ATTEND A COMMUNITY CAFE:
10. Access to leading experts in the Nephrology world
9. Enjoy kidney friendly, low sodium food
8. Learn what 3 questions to ask your nephrologist at your next appointment
7. Find out what events are happening in your area
6. Get the inside scoop on research
5. Meet others and stop feeling alone
4. Hear the do’s and don’ts from a renal dietitian
3. Empower yourself with scientific knowledge
2. Become part of a global community working towards a cure
1. You owe it to yourself to know everything about what’s happening
UPCOMING COMMUNITY CAFE SCHEDULE
1/1/2015 – This week, Marilyn Hailperin, NKI’s National Director of Research attended the Rare Disease Clinical Research Network (RDCRN)’s Coalition of Patient Advocacy Groups (CPAG) face-to-face meeting in Rockville, MD. The meeting included patient advocacy groups that are associated with the rare disease consortia funded by the RDCRN (a program of the NIH), including the Nephrotic Syndrome Study Network (NEPTUNE).