Two New FDA-Approved Treatments for RKD

TRUTAKNA® (atacicept) has been FDA approved for IgAN, click to learn more. FILSPARI® (sparsentan) has also been FDA approved for FSGS and more information is coming soon. Please visit our Patient Navigation tool for support.

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Bedford Mother Shares Her Story at Rare Disease Day

On February 23, 2014, aka Rare Disease Day, Lisa Cimino – a member of the NephCure family and mother to FSGS patient Brianna – shared her story and talked about what living with a rare disease is like at the State House in Boston. Read her story here. 

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