Travere Therapeutics has recently launched their Phase 2 pediatric clinical trial, EPPIK (Evaluating Problematic Proteinuria in Kids) which is aimed at helping children with FSGS, MCD, IgAN and other rare … Read more
KING OF PRUSSIA, Pa. (Dec. 12, 2022) — NephCure Kidney International (NephCure) is excited to announce new co-chairs for the organization’s Scientific Advisory Board (SAB): Alessia Fornoni, M.D., Ph.D., and … Read more
Jazrome was diagnosed at the age of 29. The onset of the diseased started when he was 27, resulting in him to be hospitalized for irregular heartbeat. His blood pressure at … Read more
FILSPARI (sparsentan) FILSPARI (sparsentan) is a recently FDA approved treatment for IgA nephropathy (IgAN). There are also studies underway for the use of FILSPARI in other types of rare kidney … Read more
Grant Opportunities Find and apply to programs specifically for glomerular disease research. NephCure – PARASOL Grant Program NephCure announces the call for applications for its scientific grant program to support … Read more
Congenital Nephrotic Syndrome (CNS) is a rare kidney disorder that begins at birth or within the first 3 months of life. Infantile Nephrotic Syndrome (INS) is also a rare kidney … Read more
Kidney Transplants Learn about kidney transplants, including what they are, the process involved and the differences between deceased donor and living donor transplants. What are Kidney Transplants? One treatment option … Read more
Being diagnosed with kidney disease often leads to a plethora of unknowns, as medical literature on such conditions may be scarce or outdated. Myths surrounding these diagnoses can exacerbate confusion … Read more
Types of Rare Kidney Disease Gain insight into various types of rare kidney diseases, offering an understanding of each condition. Under the broad umbrella of rare kidney disease, these diseases … Read more
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