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Types of RKD
Types of Rare Kidney Disease Gain insight into various types of rare kidney diseases, offering an understanding of each condition. Under the broad umbrella of rare kidney disease, these diseases … Read more
Search Results for: what%20is%20fsgs
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Rival Game Relay Raises Money and Awareness for NephCure
Mike and Kate Maurer are runners who came up with an inspired idea and organized a great event for a great cause, but they’re more than that: they’re parents to … Read more
Teens Come Together to Take Charge of Their Health
On Friday, June 6, 2014, a luncheon/meet-up designed just for teens and ‘tweens and their families was held at Nemours/A. I. duPont Hospital in Wilmington, Delaware. It was the first … Read more
NephCure Kidney International Featured on HealthPopuli.com
Many thanks to Health Economist and Influencer Jane Sarasohn-Kahn for her profile of NephCure Kidney International on her wildly popular blog, Health Populi. We had a great time discussing the … Read more
NephCure in the News
PatientCrossroads Launches New Patient Registries The new rare-disease registries arose from the NIH Global Rare Diseases Registry (GRDR) pilot program San Mateo, Calif. (PRWEB) September 04, 2014 PatientCrossroads announces the … Read more
Bedford Mother Shares Her Story at Rare Disease Day
On February 23, 2014, aka Rare Disease Day, Lisa Cimino – a member of the NephCure family and mother to FSGS patient Brianna – shared her story and talked about … Read more
NKI Grand Rapids Walk October 18th
Grand Rapids, MI – The NephCure Kidney Walk returns for the 4th year to the Grand Rapids area, Sunday, October 18th. The walk brings together area patients, friends, and family dedicated … Read more
NephCure Kidney International and Local NY Teenager Sydney Levine Launch MARCHing to Awareness
FOR IMMEDIATE RELEASE Contact Information: NephCure Kidney International Erin Russell erussell@nephcure.org NephCure Kidney International and Local NY Teenager Sydney Levine Launch MARCHing to Awareness {Melville, NY, March 2, 2016} – … Read more
