RESOURCES

/

FIND A SPECIALIST

/

CONTACT

Focal-Segmental-Glomerulosclerosis (FSGS)

DOWNLOAD PDF

Overview and Symptoms:

Focal Segmental Glomerulosclerosis (FSGS) is a rare kidney disease characterized by dysfunction in the part of the kidney that filters blood (glomeruli). Only some glomeruli are affected, but continued damage can lead to kidney failure.

Protein in the urine, which can be foamy (proteinuria)

Low levels of protein in the blood (hypoalbuminemia)

Swelling in parts of the body, most noticeable around the eyes, hands, feet, and abdomen (edema)

Weight gain due to extra fluid building up in your body

Can cause high blood pressure (hypertension) and high fat levels in the blood (high cholesterol)

Fast Facts


FSGS occurs more frequently in adults than in children and is most prevalent in adults 45 years or older.



African Americans are 5 times more likely to get FSGS in comparison with the general population


Every FSGS patient follows a unique journey.



Focal Segmental Glomerulosclerosis is one of the leading causes of End Stage Renal Disease (ESRD) in children



FSGS is associated with up to 20% of all new cases of Nephrotic Syndrome in children each year.

Treating Your Disease

Short-Term Goals

The short-term goal of treatment is to stop protein spillage completely (remission) or lower the amount of protein lost in the urine as much as possible.

Long-Term Goals

The long-term Goals of treatment include preventing relapses of protein in the urine and preventing the deterioration of kidney function.

There are currently no FDA-approved treatment options for FSGS. The standard first-line treatment for FSGS is Prednisone, a corticosteroid.

How to Live With Your Disease

1

Following a low-fat, low-sodium diet will help improve your kidneys’ function and your FSGS symptoms.

2

Finding a nephrologist who specializes in FSGS is very important to your long-term health.

3

Learn about your disease, treatment options, and clinical trials in order to better advocate for yourself.

4

NephCure Kidney International can help you connect with other patients and find support to manage your disease.

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Related Resources

Video

Plant-Based Diet and Kidney Disease

Video

Mental Health Patient and Caregiver Panel

Video

Newly Diagnosed Parents – Nephrotic Syndrome 101

Educational Materials

School Accomodations

ALL RESOURCES

Sign up to get NephCure’s latest updates.

SIGN UP
Este campo es para fines de validación y no debe modificarse.