Observational Study
researchers track health outcomes over time in groups of participants to look for patterns that help us better understand a disease.
NEPTUNE
Nephrotic Syndrome Study Network (NEPTUNE)
Breve descripción
The purpose of this study is to gather long-term observational data in order to help understand the biology behind nephrotic syndrome.
Nombre del sitio
Emory University and Children's Healthcare of Atlanta
Patrocinador
The University of Michigan
Matrícula estimada
1200
Observational Study
researchers track health outcomes over time in groups of participants to look for patterns that help us better understand a disease.
NEPTUNE
Nephrotic Syndrome Study Network (NEPTUNE)
Breve descripción
The purpose of this study is to gather long-term observational data in order to help understand the biology behind nephrotic syndrome.
La prueba es para personas con
Primary focal segmental glomerulosclerosis (FSGS), membranous nephropathy (MN), or minimal change disease (MCD)
Objetivo del estudio
NEPTUNE seeks to increase the understanding and improve treatment of rare forms of Nephrotic Syndrome.
¿Qué implica para el paciente?
Patients will be asked to allow researchers to access medical history. The study team may also collect biosamples (blood, urine, biopsy tissue). Visits may be in conjunction with normally scheduled appointments, but additional study visits may be required.