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Improving Outcomes Through Patient Provider Relations | Patient Summit with Dr. Sreedhar Mandayam

Improving Outcomes Through Patient Provider Relations | Patient Summit with Dr. Sreedhar Mandayam
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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.

Dr. Sreedhar Mandayam, nephrologist and NephCure Specialist, presented a session surrounding how to improve outcomes through relationships with patient providers.

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Turning Adversity Into Action | Patient Summit Seminar on Advocacy for RKD

Turning Adversity Into Action | Patient Summit Seminar on Advocacy for RKD
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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.

Britta Dornan, NephCure’s Executive Director of Strategic Relations, hosted a panel with Texas Senator Kelly Hancock, Mary Baliker, Lisa Cimino, and Kimberly Queen surrounding their journey with RKD and how to turn their adversity from their disease into actionable cause.

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Treating Inflammation Through Diet with Jennifer Moore

Treating Inflammation Through Diet with Jennifer Moore - Patient Summit

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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.

Jennifer Moore, a Masters Level Registered Dietitian, presented a second session surrounding treating inflammation through diet for kidney disease and how to treat it.

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Plant-Fed Kidneys with Jennifer Moore

Plant-Fed Kidneys with Jennifer Moore - Patient Summit 2024

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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.

Jennifer Moore, a Masters Level Registered Dietitian, presented a session surrounding a plant-based diet for kidney disease and how to manage it.

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The History & Innovation of C3G: Patient Summit Seminar with Dr. Corey Cavanaugh

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During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.

Dr. Corey Cavanaugh, nephrologist and NephCure Specialist, presented an educational session surrounding the history of C3G, innovations that are coming, and how to best prepare.

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IgAN Empowerment: IgAN Awareness Town Hall

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This video explores IgA Nephropathy (IgAN), a rare kidney disease that impacts both men and women of any age.

Learn about:
– What is IgAN and how it impacts patients
– Latest research and treatment options
– Personal stories from IgAN warriors and more!

Whether you’re living with IgAN, know someone who is, or want to learn more about this often-overlooked condition, this video is for you. Help us spread awareness and hope for those affected by IgA Nephropathy.

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If you or your loved ones are dealing with IgAN, this is a resource you won’t want to miss!

IgAN Patient Empowerment | Jennifer Reil’s Story

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Meet Jennifer Reil, a patient who was diagnosed with IgA Nephropathy (or commonly known as IgAN, or Berger’s Disease). IgA nephropathy (IgAN) is a rare kidney disease that causes inflammation in the kidney’s filtering units, which can result in kidney damage and may lead to kidney failure. Hear the compelling story of Jennifer Reil, who has faced challenges and built resilience in order to navigate this condition.

To learn more about IgAN and see important resources that can support you or a loved one, visit our IgAN Kidney Disease page.

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IgAN Patient Empowerment | Tony Pisa’s Story

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Meet Tony Pisa, a patient who was diagnosed with IgA Nephropathy (or commonly known as IgAN, or Berger’s Disease). IgA nephropathy (IgAN) is a rare kidney disease that causes inflammation in the kidney’s filtering units, which can result in kidney damage and may lead to kidney failure. Hear the compelling story of Tony Pisa, who has faced challenges and built resilience in order to navigate this condition.

To learn more about IgAN and see important resources that can support you or a loved one, visit our IgAN Kidney Disease page.

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IgAN Patient Empowerment | Sean Converse’s Story

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Meet Sean Converse, a patient who was diagnosed with IgA Nephropathy (IgAN) in late 2022 after battling an acute upper respiratory illness. IgAN is a rare kidney disease that causes inflammation in the kidney’s filtering units, which can result in kidney damage and may lead to kidney failure. Hear the compelling story of Sean Converse who has navigated the challenges of this condition, all at an incredibly young age.

To learn more about IgAN and see important resources that can support you or a loved one, visit our IgAN Kidney Disease page.

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IgAN Patient Empowerment | Elle Lee’s Story

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Meet Elle Lee, a patient who was diagnosed with IgA Nephropathy (or commonly known as IgAN, or Berger’s Disease). IgA Nephropathy (IgAN) is a rare kidney disease that causes inflammation in the kidney’s filtering units, which can result in kidney damage and may lead to kidney failure. Hear the compelling story of Elle Lee, who has faced challenges and built resilience in order to navigate this condition.

To learn more about IgAN and see important resources that can support you or a loved one, visit our IgAN Kidney Disease page.

Visit our Youtube page