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NephCure Celebrates Kidney Month this March with Awareness and Fundraising Campaign  

PHILADELPHIA, PA – March is Kidney Month, and NephCure is proud to join the global movement to raise awareness about kidney health. As the only kidney organization squarely focused on rare, protein-spiling kidney diseases, NephCure is committed to advocating for the thousands of patients and families affected by conditions such as FSGS, IgAN, Nephrotic Syndrome and other rare  kidney diseases.  

Though individually classified as rare, these diseases belong to a group of 150 conditions, each affecting fewer than 200,000 people in the U.S. Collectively, rare kidney diseases (RKD) impacts a significant number of individuals, yet they often remain underdiagnosed and misunderstood. NephCure works to change that by providing expert resources, funding groundbreaking research, and helping advance new treatments to improve patient outcomes. 

Your Support Changes Lives: NephCure Aims to Raise $25,000 This Kidney Month in Honor of its 25th Anniversary 

For 25 years, NephCure has been committed to creating a world where all who are affected by RKD are connected to new and better treatments—and one day, a cure. 

As the organization moves towards this milestone, NephCure has set a goal to raise $25,000 during Kidney Month, in honor of their 25th anniversary. Your support directly impacts those affected by RKD, funding critical initiatives such as: 

  • Innovative research to accelerate the discovery of breakthrough treatments
  • Educational resources to empower patients and families
  • Patient support programs that connect and uplift the RKD community   

Community members can show their support for NephCure throughout Kidney Month by visiting the official Kidney Month landing page. This dedicated resource page offers multiple ways to get involved, including:

  • Making a donation to fuel critical research and advocacy efforts
  • Sharing personal stories to help raise awareness of rare kidney diseases
  • Accessing expert resources to better understand RKD, its impact, and available support 

In addition, NephCure has created a social media toolkit to encourage widespread digital advocacy and is offering Kidney Month T-shirts for purchase to help spread awareness. 

Any of the actions that can be taken on this page—whether big or small—contribute to the fight against RKD. By engaging with these tools and spreading awareness, individuals can play a vital role in advancing NephCure’s mission.  

Corporate Sponsors and Partners Help Drive Awareness and Impact 

NephCure’s Kidney Month efforts would not be possible without the generous support of its corporate sponsors: Boehringer Ingelheim, Novartis, Otsuka, and Travere Therapeutics.  

Additionally, NephCure is partnering with Xtrema Ceramic Cookware, Black Health Matters, and PateintsLikeMe to amplify the Kidney Month campaign across social media.  

Make an Impact This Kidney Month 

NephCure invites individuals, organizations, and advocates to join in amplifying the voices of those living with rare kidney diseases. By raising awareness, supporting critical research, and fostering a stronger patient community, we can create a future with better treatments and improved quality of life for those affected. 

For more information on how to support NephCure’s Kidney Month initiatives, click here.

About NephCure 

NephCure’s mission is to empower people with rare, protein-spilling kidney disease to take charge of their health, while leading the revolution in research, new treatments, and care. Founded in 2000 by a group of committed patient parents, NephCure has invested more than $40 million in kidney disease research and helped create a landscape where there are now new treatments and more than 60 interventional drug trials for rare kidney diseases. NephCure is a U.S. tax exempt 501(c)(3) public charity.

NephCure Kidney International and Local NY Teenager Sydney Levine Launch MARCHing to Awareness

FOR IMMEDIATE RELEASE

Contact Information:
NephCure Kidney International
Erin Russell
erussell@nephcure.org

NephCure Kidney International and Local NY Teenager
Sydney Levine Launch MARCHing to Awareness

{Melville, NY, March 2, 2016} – NephCure Kidney International and Sydney Levine, from Melville , NY, will be MARCHing to Awareness for the month of March.  Sydney, 15, rang the closing bell at the NYSE yesterday to kick off her month long drive to promnote awareness of  chronic kidney disease.  Sydney’s brother, Matthew, 12, has Focal segmental glomerulosclerosis (FSGS), a rare kidney disease for which there is no cure.

FullSizeRenderMARCHing to Awareness is a campaign aimed at promoting f National Kidney Disease Awareness Month and will target a different activity each day of the month.  Yesterday, March 1, Sydney spoke in front of the Suffolk County Legislature and rang the NYSE closing bell.

“Academics aside, I wanted to express my admiration for Matthew in the way he conducts himself.  In spite of his condition, his positive attitude never waivers.  I cannot remember the last time I didn’t see him with a smile on his face.  Many kids would use his condition as a crutch or an excuse; he appears to use it as a motivator.  I, for one, am inspired by this. I hope this month is just a start to finding a permanent solution to what Matthew and other kids like him are going through,” Chris Regini, Matthew and Sydney’s science teacher.

For more information, please visit www.nephcure.org or search #KidneyAwarenessMonth

NephCure Kidney International is the only organization committed exclusively to support research seeking the cause of the potentially debilitating kidney disease Focal Segmental Glomerulosclerosis (FSGS) and the diseases that cause Nephrotic Syndrome, improve treatment, and find a cure.

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