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APOL1 Empowerment: APOL1 Awareness Day Town Hall 2025

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This video explores Apolipoprotein L1 (APOL1), a rare kidney disease that impacts both men and women of any age.

Learn about:
– What is APOL1 and how it impacts patients
– Latest research and treatment options
– Personal stories from APOL1 warriors and more!

Whether you’re living with APOL1, know someone who is, or want to learn more about this often-overlooked condition, this video is for you. Help us spread awareness and hope for those affected by Apolipoprotein L1.

Visit our Youtube page
If you or your loved ones are dealing with APOL1, this is a resource you won’t want to miss!

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Patient Empowerment Flyer

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

FSGS Awareness Day Town Hall 2025

Educational Materials

School Accomodations

ALL RESOURCES

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