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IgAN Awareness Day 2026
May 14th
On May 14, 2026, NephCure celebrates IgAN Awareness Day — a dedicated time to raise our voices and drive real progress for those affected by IgA nephropathy (IgAN). IgAN is a rare kidney disease in which a protein called Immunoglobulin A (IgA), part of the body’s immune system, builds up in the kidneys, causing inflammation and overtime, scarring that can lead to kidney failure. For the first time, there are FDA-approved treatments that may help those impacted by IgAN!
Whether you are living with IgAN, caring for someone who is, or a kidney disease advocate, we encourage you to join our live town hall/panel on May 14th at 4:15pm CST to learn more about what’s next for IgAN, new treatment options, and more.
What is IgA Nephropathy?
IgA nephropathy (IgAN) is a kidney disease in which Immunoglobulin A (IgA) builds up in the kidney. IgA is a protein in the blood and is also part of the immune system. Excess IgA can cause inflammation in the kidney and over time, this leads to scarring in the kidney tissue. The severity of kidney disease caused by IgAN varies from person to person. As IgAN progresses, it reduces the kidneys’ ability to filter waste from the blood.
Because symptoms can be subtle, many people are diagnosed late, making awareness and early action critical!
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The IgAN Journey Can be a Difficult One
Hear the compelling stories of four IgA nephropathy patients from various backgrounds and lifestyles who have navigated the challenges of this condition.
Their experiences highlight the resilience, difficulties, and triumphs that come with managing a rare kidney disease.
Through their voices, we gain a deeper understanding of what it means to live with IgAN, and the importance of awareness, support, and research in improving the lives of those affected.
New Treatments Are Changing What’s Possible
For decades, patients had limited treatment options. There are now multiple FDA-approved treatments for IgAN that target the disease in different ways, from reducing inflammation to lowering protein in the urine. Understanding these options and knowing the questions to ask your doctor can make a meaningful difference in your kidney health.
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Understanding and Navigating IgAN: An Essential Handbook
Take charge of your journey with NephCure’s comprehensive IgAN Patient Handbook—an essential resource for anyone living with IgA nephropathy. This in-depth guide walks you through every stage, from diagnosis and treatment options to lifestyle guidance and important questions to discuss with your care team.
Access this valuable tool to better manage your rare kidney disease and feel more confident in your care. Complete the form to download your free copy and start taking control of your health today.
Get Your Free handbook
Help Spread Awareness
Spread the word about IgAN Awareness Day! Share our downloadable graphics on your social media and use your voice to raise awareness. Be sure to check out the IgAN Awareness Day Toolkit—it’s packed with templates and tips to make posting easy and impactful. Don’t forget to use #NephCureIgAN and tag @NephCure in your posts!
Download Toolkit
Join the IgAN Live: Hear Directly from Experts
This IgAN Awareness Day, be part of the conversation. Join NephCure live from the IgAN Alliance Workshop that will bring together leading researchers, physicians, and patient voices for a live panel event.
This is your opportunity to listen, learn and ask questions.
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IgAN Alliance White Paper
Explore the inaugural IgAN Alliance White Paper, Overcoming the Barriers to Diagnosis and Treatment of IgA Nephropathy, a report bringing together patients, caregivers, clinicians, advocacy organizations, and industry leaders to address the biggest challenges facing the IgAN community. This report highlights the urgent need for earlier diagnosis, faster access to kidney biopsy and specialist care, improved treatment access, stronger patient education, and better support for navigating insurance and clinical trials.
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IgAN Alliance 2025 Workshop Summary
The first IgAN Alliance convening brought together a diverse group of stakeholders for an intensive workshop focused on identifying the most significant barriers in IgAN care.
Discussions highlighted delays in diagnosis, the need for stronger coordination between patients and providers, and ongoing access and evidence gaps that limit early treatment. Addressing these challenges will require collaboration across the community. Click below to view the full report.
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Wear Your Support
Show your support and spark conversations this IgAN Awareness Day with our limited-edition t-shirt. Every shirt helps raise awareness of IgA nephropathy and supports efforts to improve patient care and research. Designed for comfort and impact, it’s an easy way to stand with the IgAN community. Get yours today and wear your voice proudly.
Thank You to Our IgAN Awareness Day 2026 Sponsors
Ways to Give
This IgAN Awareness Day, you can make a difference in the future of care. Every donation expands awareness, supports patients and families, and fuels the research needed to change lives. Join us. Give today.
