NephCure Launches Improved Clinical Trial Page to Help Rare Kidney Disease Patients Find Studies That Match Their Unique Health Needs

Aug. 1st, 2025 – NephCure proudly announces the launch of its redesigned Ensayos clínicos webpage and Am I a Match? tool, built to offer an easier and more personalized way for patients and caregivers to search for clinical trial opportunities for rare, protein-spilling kidney diseases.

These updates are designed with the Enfermedad renal rara (ERR) community at the center, aiming to reduce confusion, save time, and help people feel more confident navigating clinical trials. By simplifying how patients find and understand research opportunities, this launch reflects NephCure’s ongoing goal of connecting people living with RKD to expert care as quickly as possible.

What’s New?

At the core of the update is the improved “Am I A Match?” tool – an interactive questionnaire that helps patients quickly see which clinical trials might be a good fit for them based on their current health situation. 

The tool focuses on a few non-identifying questions about things like: 

• Your RKD diagnosis
• If you’re on dialysis or had a transplant  
• Whether you’ve had a kidney biopsy
• Your kidney function, and past treatments. 

Once the questionnaire is completed, the tool filters available clinical trials based on the responses, so users can see only the studies that might apply to them. 

Additional filtering features allow users to:

• Filter results by age group, trial type, diagnosis, enrollment status, and location
• Search by zip code to find trials close to home
• Download a personalized list of trial matches as a PDF to share with their doctor, care team, or family

Each clinical trial listing gives users a quick snapshot of what the study is about, who it’s for, and what’s involved. If individuals find a trial that seems like a good fit, they can fill out a form and click “I’m Interested” to directly send an inquiry to the research team.

For many living with rare, protein-spilling kidney diseases like FSGS, IgAN, or C3G, clinical trials can provide early access to promising treatments. This updates webpage is designed to make the process of understanding which clinical trials are relevant to be less intimidating and more accessible. 

To explore the redesigned Clinical Trial webpage and “Am I a Match?” tool, visit https://nephcure.org/managing-rkd/clinical-trials/. 

Acerca de NephCure:

NephCure’s mission is to empower people with rare, protein-spilling kidney disease to take charge of their health, while leading the revolution in research, new treatments, and care. Founded in 2000 by a group of committed patient parents, NephCure has invested more than $40 million in kidney disease research and helped create a landscape where there are now new treatments and more than 60 interventional drug trials for rare kidney diseases. NephCure is a U.S. tax exempt 501(c)(3) public charity.