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Membranous Nephropathy Awareness Day 2026
August 11th
NephCure is proud to announce this inaugural day in recognition of Membranous Nephropathy,
a rare protein-spilling kidney disease.
If you or someone you love is living with Membranous Nephropathy, you’re part of a community that understands the journey. Connect with others by joining our virtual Meet & Greet, where you can share your story, ask questions, and learn about the support and resources NephCure provides. You can also take our quick 2-minute survey to share your experience and help guide future programs, resources, events, and advocacy efforts for the MN community. Every conversation and every response helps us better support families affected by Membranous Nephropathy.
Get Your Voice Heard
If you or someone you love is living with membranous nephropathy, we want to hear from you. Your experience matters and can help shape future programs, resources, events, and advocacy efforts at NephCure.
Take our quick 2-minute survey to share your perspective and help us better support the MN
community.You will also receive a gift bag including a journal, pen, and other NephCure swag!
What is Membranous Nephropathy?
Membranous nephropathy (MN) is a kidney disease that causes injury to the small filters (glomeruli) in kidney tissue. It occurs when the person makes antibodies that damage kidney cells which form part of the kidney filters. Doctors most often diagnose MN in adults, it is a rare disease in children. Most cases of MN only affect the kidneys. In about 25% of cases, doctors can link MN with other conditions, such as:
– Cancer
– Medication side effects
– Lupus
– Viral infections
A Story of Strength: Dan Holmes’ Journey with Membranous Nephropathy
Meet Dan, originally from Baltimore and now living in Florida. Dan served in the U.S. Navy from 2003 to 2008 as a Special Operations Search and Rescue operator. During his service, he helped rescue four sailors trapped during the devastating 2008 aircraft carrier fire, where he was exposed to AFFF firefighting foam.
After leaving the military, Dan was diagnosed with PTSD in 2012 and learned to navigate the VA healthcare system while seeking treatment. In 2020, he was diagnosed with Membranous Nephropathy after being hospitalized with nephrotic syndrome, launching him into a new battle with a rare kidney disease.
Determined to understand his condition, Dan approached his diagnosis with the same determination he used during military rescue missions. He endured serious complications, including blood clots, collapsed lungs, strokes, and significant fluid retention, before a reanalysis of his kidney biopsy revealed particles consistent with firefighting suppression foam. After a lengthy VA claims process, his disease was recognized as 100% disabling. Today, Dan is a dedicated rare kidney disease advocate who shares his story with policymakers, healthcare leaders, researchers, and patient communities to raise awareness and improve support for others living with rare kidney diseases.
How You Can Participate
Join NephCure in the Movement to Raise Awareness of Membranous
Nephropathy
Post Your Photos and MN Awareness Graphics on Social Media
Help us flood social media with photos and downloadable graphics with MN statistics and other information to raise awareness. Don’t forget to tag @NephCure and use the hashtag #HopeForMN so we can stay engaged with you!
Join Our Live Patient Meet and Greet
August 11ᵗʰ at 7 pm ET
Join a casual virtual coffee hour with people who are personally impacted by Membranous Nephropathy to connect, share your story, and learn more about the resources NephCure has to offer.
Wear Your Support
Show your support and spark conversations this MN Awareness Day with our limited-edition t-shirt. Every shirt helps raise awareness of Membranous Nephropathy and supports efforts to improve patient care and research. Designed for comfort and impact, it’s an easy way to stand with the MN community. Get yours today and wear your voice proudly.
¿Sabías?
Some people with MN do not have symptoms. Often, doctors find the condition through
routine testing that detects protein in the urine. Other patients may experience swelling
and other signs of abnormal kidney function.
Los signos comunes de MN incluyen:
-Fatigue
-Urine that looks foamy or frothy
-Swelling in the ankles and legs
-High levels of protein in the urine
-Low levels of protein in the blood
Pueden ocurrir complicaciones de la afección, como:
-Blood clots
-High cholesterol
-Infection
-Worsening kidney function
Join a MN Clinical Trial
You have the power to shape the future of membranous nephropathy. Participating in a clinical trial gives you access to cutting-edge treatments and expert care while helping advance research. Use our clinical trial matching tool to find one of the 10 active MN trials near you.
Explore MN TiralsThank You to Our MN Awareness Day 2026 Sponsors
Maneras de dar
This MN Awareness Day, you can make a difference in the future of care. Every donation expands awareness, supports patients and families, and fuels the research needed to change lives. Join us. Give today.
