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Dr. Vimal Derebail from the University of North Carolina as share trends, new innovations, and research around dialysis and transplant for those with rare protein-spilling kidney diseases.
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Pediatric Dialysis & Transplant Patients Update
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Join Dr. Kathrine Twombley from Medical University of South Carolina share trends, new innovations and research around dialysis and transplant for those with rare protein spilling kidney diseases.
Visit our Youtube pagePatient-Centered Clinical Trials Panel
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First-hand from patients, a caregiver, a doctor, and industry representatives about participating in, coordinating, and designing a clinical trial.
This moderated discussion provides in-depth information on what clinical trial participation is like and considerations to think about before you enroll.
Visit our Youtube pageMental Health and Chronic Illness
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Caitlin Dwyer, a Licensed Clinical Social Worker, dives into common issues of depression, anxiety, event-related stress, and cognition, as well as provide tools and resources for support, self-care, and how to find a mental health provider.
This talk highlights the importance of mental health and the steps you can take to positively impact your quality of life.
Visit our Youtube pagePlant-Based Diet and Kidney Disease
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Dr. Shivam Joshi, Clinical Professor and Nephrologist at NYU Langone, discusses the principles of plant-based diets, dietary protein, and how your kidneys may respond to this type of nutrition. He shares research and significant data on plant-based diets and how taking control of your diet may slow the progression of kidney disease.
Chef Duane Sunwold, a professional chef and culinary arts instructor in Spokane and North Idaho, joins Dr. Joshi to share his journey with FSGS and how he took control of his disease through a plant-based diet. He also shares tips and tricks on how to start following a plant-based diet, and resources for cookbooks, recipes, and some of his favorite websites that he uses both personally and professionally.
While Dr. Joshi provides the scientific data on how a plant-based diet can change the trajectory of your disease, Chef Duane offers practical and real-life recommendations on how you can start incorporating more plants into your diet — without losing flavor and variety!
Visit our Youtube pagePredictors of Disease Progression: Biomarkers & Treatment Response in Adults
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Dr. Kirk Campbell, Professor of Medicine and Director of the Nephrology Fellowship program at Mount Sinai, reviews important biomarkers in kidney diseases and explain how they help us determine our kidney function.
Dr. Campbell also discusses new research that may impact how doctors are looking at rare kidney diseases and reviews the treatment options available to patients.
Visit our Youtube pageMental Health Patient and Caregiver Panel
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Join NephCure for a mental health-focused patient panel. Hear from five patients and a patient parent affected by rare, protein-spilling kidney diseases about their struggles and the coping strategies they’ve developed throughout their journeys.
Our panel dives deeper into the mental health impacts of living with rare kidney disease and discusses how we can come together as a community to improve resources and support.
Visit our Youtube pageRace Inclusion in Kidney Disease
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For more than 20 years, eGFR was calculated differently for Black and non-Black people. Using these two different calculations has led to disparities in the way patients are able to access care and treatments for kidney disease.
In 2020, a task force was established to reassess the use of race in calculating eGFR. Dr. Crystal Gadegbeku, Chair of Nephrology at Cleveland Clinic, was part of this task force, and led a discussion on the history, the process, and the significance of removing race-based calculations in nephrology — she also explains how removing the racial bias from eGFR calculations can improve health outcomes for all kidney disease patients.
Visit our Youtube pagePredictors of Disease Progression: Biomarkers & Treatment Response in Children
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Predicting kidney disease progression isn’t easy, but research has shown nephrologists key indicators to look for and track.
Dr. Marva Moxey-Mims, Professor of Pediatrics and Chief of Nephrology at Children’s National Health System, focuses on understanding predictors of rare kidney disease progression, including common biomarkers and their significance in not only disease monitoring, but how they are being used to get a more precise diagnosis.
She also covers genetic testing in pediatric nephrology and provide guidance on if or when you should consider genetic testing for your child.
Visit our Youtube pageMCD vs. FSGS: Breakdown of Diagnostics and Clinical Course
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MCD and FSGS, two major causes of Nephrotic Syndrome, have aspects that resemble one another.
Dr. Suneel Udani reviews the similarities and differences between MCD and FSGS and discusses the age-old question: are these two diseases the same?
Dr. Udani also reviews current treatment options, the significance of precision medicine, how research is uncovering new factors that may be driving disease progression, and how current clinical trials may provide the key to stopping it all.
Visit our Youtube pageHow to Take Control of Your Rare Kidney Disease
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In this webinar, led by Dr. Chia-Shi Wang from Emory, you will learn more about Nephrotic Syndrome and other rare kidney diseases, and review some of the challenges with managing it.
Dr. Wang also discusses the possibilities of e-Health and how the Internet and mobile devices may improve your health and the care you receive from your doctor!
Visit our Youtube pageNephCure U: A C3G Update Webinar
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This NephCure U webinar, hosted by Dr. Carla Nester, gives us an update on C3G (a collective name for a group of rare kidney diseases that involve a specific part of your immune system).
Dr. Nester also explains more about the current treatment options for C3G and updates us on the clinical trials available.
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