Observational Study
researchers track health outcomes over time in groups of participants to look for patterns that help us better understand a disease.
NEPTUNE
Nephrotic Syndrome Study Network (NEPTUNE)
Brief Description
The purpose of this study is to gather long-term observational data in order to help understand the biology behind nephrotic syndrome.
Site Name
Johns Hopkins Medical Institute
Sponsor
The University of Michigan
Estimated enrollment
1200
Observational Study
researchers track health outcomes over time in groups of participants to look for patterns that help us better understand a disease.
NEPTUNE
Nephrotic Syndrome Study Network (NEPTUNE)
Brief Description
The purpose of this study is to gather long-term observational data in order to help understand the biology behind nephrotic syndrome.
Trial is for people with
Primary focal segmental glomerulosclerosis (FSGS), membranous nephropathy (MN), or minimal change disease (MCD)
Study Goal
NEPTUNE seeks to increase the understanding and improve treatment of rare forms of Nephrotic Syndrome.
What is involved for the Patient?
Patients will be asked to allow researchers to access medical history. The study team may also collect biosamples (blood, urine, biopsy tissue). Visits may be in conjunction with normally scheduled appointments, but additional study visits may be required.