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Patient Navigation Services

The Patient Navigation Program equips expert staff to help rare kidney disease (RKD) patients, caregivers, and care partners navigate the complexities of healthcare services and systems. Building strong relationships with individuals and families affected by rare kidney diseases, this program focuses on identifying and solving problems, locating resources, reducing health disparities, empowering patients to get the care they need.


Through personalized guidance, this program assists with various aspects of the disease journey, including:

  • Healthcare access
  • Genetic testing
  • Mental health
  • Physician referral/Second Opinions
  • School support services (such as IEPs and 504 plans)
  • Insurance
  • Medication assistance programs
  • And more!

If you need support or have questions, complete the form below to connect with some of our specialized staff members and access valuable assistance on your RKD journey.

Related Resources

Informational Documents

Patient Empowerment Flyer

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

FSGS Awareness Day Town Hall 2025

Educational Materials

School Accomodations

ALL RESOURCES

Sponsors

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