Two New FDA-Approved Treatments for RKD

TRUTAKNA® (atacicept) has been FDA approved for IgAN, click to learn more. FILSPARI® (sparsentan) has also been FDA approved for FSGS and more information is coming soon. Please visit our Patient Navigation tool for support.

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FSGS Awareness Day Town Hall 2025

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On June 10th, NephCure and its community came together to recognize FSGS Awareness Day—a day dedicated to shining a light on Focal Segmental Glomerulosclerosis (FSGS), a rare kidney disease that causes scarring in the kidney’s and can ultimately lead to kidney failure.

Thank you to everyone who participated, shared resources, and helped amplify this important message. To learn more about FSGS, visit NephCure.org!

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Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Sparsentan (FILSPARI) for FSGS: FAQs

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

Navigating Nutrition in Protein-Spilling Kidney Disease

Educational Materials

School Accomodations

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