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Step by Step: The Path to Renal Transplant

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For many people living with ​rare kidney disease, transplant is part of the conversation, but the process can feel unclear or far away. In this session, a transplant nephrologist and a Living Donor and Paired Donation Coordinator will walk you through what actually happens at a transplant evaluation, from what to bring to what questions to ask.

You will also learn about living donor transplant, including how paired donation and the National Kidney Registry work to find matches when a direct donation is not possible. Whether you are early in the conversation or already moving toward listing, this session will help you understand what the path looks like.

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Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Sparsentan (FILSPARI) for FSGS: FAQs

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

Navigating Nutrition in Protein-Spilling Kidney Disease

Educational Materials

School Accomodations

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