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Focal Segmental Glomerulosclerosis (FSGS)
Focal Segmental Glomerulosclerosis (FSGS) FSGS is a term that describes a pattern of scarring in the kidneys. This scarring can be seen on a biopsy in patients with increased levels … Read more
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An Inside Look: Vertex’s Study in APOL1-FSGS
We recently sat down with Dr. Ogo Egbuna, Vertex Pharmaceutical’s clinical development lead for their clinical trial in APOL1-mediated focal segmental glomerulosclerosis (FSGS) to learn a bit more about their … Read more
You Can Change FSGS Treatment Options: EL-PFDD 2020
Externally led patient-focused drug development (EL-PFDD) meetings bring together patients and care partners, US Food and Drug Administration (FDA) representatives, pharmaceutical companies, and doctors who are experts in the particular … Read more
Advocacy Alert! Ask your Senators to sign FSGS funding letter
Contact both your Senators and ask that they sign on to Senator Debbie Stabenow’s (D-MI) letter supporting the inclusion of “focal segmental glomerulosclerosis (FSGS)” as condition eligible for study through … Read more
Bala’s Battle with FSGS
At the age of 20 years old, Bala Krishnalal’s life was forever changed by the results of a kidney biopsy. In 2014, after suffering from recurring fevers for two years, Bala Krishnalal … Read more
Do you have Focal Segmental Glomerulosclerosis (FSGS)?
Have you or your loved one been diagnosed with FSGS? We have resources for you. The rates of severe kidney disease are high in individuals who are African American, Hispanic … Read more
FSGS is Now on WebMD
A new educational resource is available for FSGS patients worldwide. We are proud to collaborate with WebMD/Medscape to make focal segmental glomerulosclerosis (FSGS) available as a program on the WebMD … Read more
Advocacy in Action: More Funding for FSGS Research!
Remember When… Back in January, FSGS was officially added to the list of conditions eligible for research funding through the Department of Defense’s 2015 Peer Reviewed Medical Research Program (PRMRP). … Read more
Global Collaboration at PARASOL Project Enhances FSGS Clinical Trials and Hope of New Treatment Options
On December 9, 2023, researchers, doctors, regulators, and patients from across the globe met in Washington, D.C. at the Proteinuria and GFR as Clinical Trial Endpoints in Focal Segmental Glomerulosclerosis … Read more
Everything You Need to Know About TRACTION-2: Clinical Opportunity for FSGS and MCD Patients
Goldfinch Bio is a biotechnology company based in Cambridge, MA which focuses on delivering disease-modifying precision medicines that bring hope and renewed quality of life to people living with kidney … Read more
Potential FSGS Treatment Option To Be Tested In Phase 3 Clinical Trial
Potential FSGS Treatment Option To Be Tested In Phase 3 Clinical Trial Early in March, Retrophin, Inc. announced plans to launch a phase 3 clinical trial to evaluate a potential … Read more
