Two New FDA-Approved Treatments for RKD

TRUTAKNA® (atacicept) has been FDA approved for IgAN, click to learn more. FILSPARI® (sparsentan) has also been FDA approved for FSGS and more information is coming soon. Please visit our Patient Navigation tool for support.

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Insurance Access for Rare Kidney Disease | Navigating Insurance Headaches

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Learn firsthand from those who have navigated the system and gain valuable insights to help you manage your own insurance journey. This webinar dives into key aspects of insurance access, featuring a panel of patients sharing their personal stories, including their struggles, victories, and practical tips for overcoming insurance challenges.

You will learn some actionable strategies from those who have successfully navigated the complexities of the insurance system. Whether you’re facing insurance hurdles yourself or seeking to better understand the process, this webinar can educate, support, and guide you.

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Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Sparsentan (FILSPARI) for FSGS: FAQs

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

Navigating Nutrition in Protein-Spilling Kidney Disease

Educational Materials

School Accomodations

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