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FSGS Awareness Day 2026
NephCure is proud to recognize the second annual FSGS Awareness Day on June 9, 2026, shining a light on focal segmental glomerulosclerosis (FSGS), a rare, progressive kidney disease that can lead to kidney failure if left untreated.
FSGS often develops quietly with symptoms that are easy to miss until serious damage has already occurred.
But now, there’s more reason for hope than ever before. In April, the first treatment for FSGS was approved by the FDA.
That means new conversations, new options, and new possibilities for people living with FSGS.
Download the FSGS Handbook to learn what to look for, what to ask your doctor, and what steps to take next.
Get the FSGS Handbook
A First for FSGS Patients: What the sparsentan Approval Means for You
During this live discussion, moderated by NephCure’s COO Lauren Eva and CEO Josh Tarnoff, leading physicians Drs. Kirk Campbell, Laura Mariani, and Howard Trachtman walked through what this sparsentan FDA approval means for the FSGS community. They also discussed who may benefit and what patients and families should know as they navigate next steps.
What is FSGS?
Focal segmental glomerulosclerosis (FSGS) is a disease that causes scarring in the kidney’s filtering units.
Over time, this damage can lead to:
- Protein leaking into the urine
- Swelling in the body
- Declining kidney function
FSGS is a leading cause of nephrotic syndrome and can progress to kidney failure.
The earlier you understand your risk, the more options you may have, including newly available treatments.
Get the FSGS Handbook
If you or someone you love is living with FSGS, having the right information can change everything.
NephCure’s FSGS Handbook gives you:
- A clear breakdown of what FSGS is and how it progresses
- Questions to ask your doctor about symptoms and treatment options
- Guidance on navigating care, support, and next steps
Now that a treatment for FSGS is available, it’s more important than ever to be informed and proactive.
Download the Handbook
Share Your Voice
Help us spread the word about FSGS Awareness Day by sharing resources, starting conversations, and showing support for those affected. Download our FSGS Awareness Day Toolkit for ready-to-use graphics, captions, and tips. Use #FSGSDay26 and tag @NephCure to be part of the movement.
Download The toolkitRecommended Financial Support Resources
As new treatment options become available for FSGS, there are programs that may help eligible patients better navigate access, affordability, and support services. Resources like The Assistance Fund (TAF) and Travere TotalCare for FILSPARI may provide financial assistance, educational resources, and treatment support for eligible individuals.
Explore TAF Support Learn About Travere TotalCare
Wear Your Support
Show your support and spark conversations this FSGS Awareness Day with our limited-edition t-shirt. Every shirt helps raise awareness of FSGS and supports efforts to improve patient care and research. Grab your FSGS Awareness T-shirt today and get 50% off with code: FSGSDAY26
Shop NowGet Your Voice Heard
If you or someone you love is living with focal segmental glomerulosclerosis, we want to hear from you. Your experience matters and can help shape future programs, resources, events, and advocacy efforts at NephCure.Take our quick 2-minute survey to share your perspective and help us better support the FSGS community.
Take The Survey
Thank You to Our FSGS Awareness Day 2026 Sponsors
