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FSGS Awareness Day 2025
On June 10th, NephCure is proud to recognize the 1st annual FSGS Awareness Day, a day dedicated time to spotlight Focal Segmental Glomerulosclerosis (FSGS)—a rare, progressive kidney disease that can lead to kidney failure.
FSGS affects individuals of all ages, often progressing silently until significant kidney damage has occurred. By raising awareness, we aim to empower patients, support caregivers, and advance research toward better treatments and, ultimately, a cure.
The time to be proactive is now. Join NephCure on June 10th at 7pm ET for a town hall sharing the tools, resources, and expert connections to help you take charge of your health.
Register now
The FSGS Journey Can be a Difficult One
Meet Joshua Albright. A happy and seemingly-healthy 17-year-old who had just graduated from high school, and on his way to college—his whole life ahead of him. By pure chance, Joshua and his mother had discovered he was in the midst of a high blood pressure crisis. Despite wanting to hang out with his friends, she sent Joshua straight to the ER
His experiences highlight the resilience, difficulties, and triumphs that come with managing a rare kidney disease.
Through his voice, we gain a deeper understanding of what it means to live with FSGS, and the importance of awareness, support, and research in improving the lives of those affected.
What is FSGS?
Focal Segmental Glomerulosclerosis (FSGS) is a disease that causes scarring in the kidney’s filtering units, leading to protein loss in the urine, swelling, and decreased kidney function. It is a leading cause of nephrotic syndrome and can progress to end-stage kidney disease.
Learn more
Get Involved
Spread the word about FSGS Awareness Day! Share our downloadable graphics on your social media and use your voice to raise awareness. Be sure to check out the FSGS Awareness Day Toolkit—it’s packed with templates and tips to make posting easy and impactful. Don’t forget to use #NephCureFSGS and tag @NephCure in your posts!
Download toolkitFSGS Awareness Day Town Hall
Listen to this insightful and empowering town hall dedicated to FSGS patient empowerment, as we spread awareness about Focal Segmental Glomerulosclerosis (FSGS), sharing heartfelt patient stories and learn more about the latest research and treatment options.
Featured speakers include Dr. Kirk Campbell, Professor of Medicine in the Division of Nephrology at the Icahn School of Medicine at Mount Sinai, and Jamayka Webb, a FSGS patient sharing their journey. Let’s unite to amplify patient voices and drive meaningful change.
register today
Kidney-Friendly Diet and Nutrition
Discover the power of a kidney-healthy diet, which consists of low salt, low fat, and low cholesterol, with an emphasis on fruits and vegetables. From mouthwatering breakfast options to delectable desserts, download NephCure’s FREE Low-Sodium, Kidney-Friendly Cookbook for dozens of kidney-friendly recipes.
Get our cookbookSpreading Awareness for FSGS
This year’s FSGS Awareness Day shines a spotlight on the real stories, urgent needs, and growing momentum in research and advocacy for the FSGS community. Whether you’re a patient, caregiver, healthcare provider, or ally, your voice can help amplify this important cause. Read the full press release and learn how we’re making an impact together.
Thank you to our corporate partners
Those that are working to improve the lives of FSGS patients and families.
