Will D.

Child, Nephrotic Syndrome

It can happen to anyone. Will is an inspirational boy, the youngest of three sons who loves to play sports. When he was 3 years old, he was diagnosed with Nephrotic Syndrome. Living with Nephrotic Syndrome is a struggle. After Will was first diagnosed he was put on a course of high dose steroids. After 18 months of these steroid treatments he had become dependent on them and had relapsed every time his doctors had attempted to take him off. The steroids were causing horrible side effects for Will, including stunted growth, kidney stones, cataracts and extreme mood swings.

After several relapses, Will began taking an immunosuppressant that is given to transplant patients. He currently takes this medication, along with a low dose of steroids, and has been in remission ever since, although the goal is for Will to be medication-free. There is still much to learn about Nephrotic Syndrome. There is no known cause, cure or definitive treatment. So much more needs to be done to find out the cause, treatment and cure for those living with this unpredictable disease and their loved ones. As we are learning, this is a very unpredictable disease, and we do not know what the outcome will be for Will. We are grateful to have found NephCure Kidney International, the only organization solely committed to seeking a cause and cure for Nephrotic Syndrome.”