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Talk to Your Doctor About Your Kidney Health: IgAN

Symptoms of rare kidney diseases are often invisible or not obvious. It is important to talk to your doctor to know the symptoms to look out for and questions to ask your doctor so that simple tests can be done to determine if you are at risk or have kidney disease.

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Signs and Symptoms of IgA Nephropathy (IgAN):

  • Swelling in the face, eyes, and lower extremities
  • Protein in the urine (proteinuria), which can be foamy
  • High cholesterol 
  • Blood in the urine (hematuria)
  • Fatigue
  • Weight gain due to extra fluid building up in the body
  • Dark or ‘cola’ colored urine after a viral infection (cold, respiratory illness, sore throat) 
  • Joint pain or pain in and around the kidneys
  • High blood pressure

Consider asking these questions at your next doctor’s appointment:

  • What is my IgAN risk assessment score and how does that impact my treatment goals?
  • Do I have protein in my urine?
  • Do I have blood in my urine?
  • What other labs should I be concerned about?
  • How many patients do you treat with IgAN?
  • Which FDA-approved therapies should we use to treat my IgAN?
  • Am I a good fit for a clinical trial?
  • What lifestyle changes can I make such as diet, exercise, habits to improve my health?
  • My IgAN symptoms or side effects from my current medications (nausea, brain fog, fatigue, swelling, pain) are affecting my quality of life. What changes can we make to ensure I am able to function better?

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

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