RESOURCES

/

FIND A SPECIALIST

/

CONTACT

Strategies for Coping with Rare Diseases

Headline decoration line

NephCure Patient Summit 2023

NephCure’s Patient Summit of 2023 hosted several key speakers to engage patients and families on rare kidney disease (RKD) education.

Dr. Al Freedman, a psychologist and father to a son living with a rare disease, spoke on various strategies and coping mechanisms with rare diseases to educate the RKD community and answer difficult questions surrounding mental health.

Visit our Youtube page

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Nephcure Site Image
Informational Documents

Sparsentan (FILSPARI) for FSGS: FAQs

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

A First for FSGS Patients: What the sparsentan Approval Means for You

Educational Materials

School Accomodations

ALL RESOURCES

Sign up to get NephCure’s latest updates.

SIGN UP
This field is for validation purposes and should be left unchanged.