Pediatric Minimal Change Disease Patient Stories

Adele was diagnosed when she was two years and five months old. She had nine relapses in three years. She was five years and five months old when her MCD become Prednisone resistant. The doctor [...]

It was just after New Years 2012 when Benson started slowing down and showing a distended tummy. He was usually a very busy, energetic four-and-a-half-year-old. At first we thought he was just [...]

In 2003, our family moved from the state of Washington to California. We noticed some swelling around then five-year-old Brady's eyes and thought it was due to allergies, since we moved to a [...]

My Brayton was diagnosed with Minimal Change Disease in November 2016, a week after receiving his first flu shot and after being misdiagnosed with pink eye. We made the trip from our local [...]

That Sunday evening, late in November, is one I will remember for the rest of my life. About two weeks prior to that night, Connor became sick and the pediatrician started him on Amoxicillin [...]

Donovan was 5 years old when we went to the doctor for his routine kindergarten physical on a sunny October afternoon. Nothing was out of the ordinary, but little did I know that our lives would [...]

Too many relapses to count, but my nanny keeps me going. She says we are gonna kick this disease in the fanny. She makes me happy when I have relapsed. Stay strong and positive!

Ethan was diagnosed at age 8, just a few weeks after his little brother was born. We were in a bit of a sleep-deprived blur, so we didn't notice Ethan's edema at first. We had never heard of [...]

In 2014, about a month before Jacob's second birthday, he began to swell around his eyes, legs and groin area. His pediatrician said it looked like an allergic reaction, to keep an eye on it [...]

I was diagnosed with Minimal Change Disease after a biopsy when I was 14 years old. I will not let this define me. This will not affect my dreams of becoming a pediatrician. I'm really [...]

During the later part of 2014, my daughter began to experience extreme puffiness around the eyes. She was already diagnosed with asthma, and now this. We went to the pediatrician. One of the [...]

In June of 2014, Jamie had what seemed like a typical childhood cold. When she wasn't getting better and started running a fever, we took her to her pediatrician and an urgent care facility, who [...]

When we returned home from a cruise to the Virgin Islands, we noticed a difference in our little boy. He began waking up with swollen eyes and would become extremely thirsty and tired. I would [...]

Makayla is a beautiful little 9-year-old girl with frequently relapsing, steroid-dependent Nephrotic Syndrome. Her primary diagnosis is Minimal Change Disease. Makayla was diagnosed just two [...]

Sean was diagnosed after having eyelid swelling for a few weeks initially. It took an allergist, ENT, and finally a visit to his primary care physician to determine the cause. He was [...]

My son Walker was diagnosed in September 2016 at age 2. Over the first 9months he was hospitalized 4 times for albumin and lasix treatments and once fora kidney biopsy. We were relieved with his [...]

I have had Nephrotic Syndrome since I was 3 years old. I was also born 11 weeks early and have a life-threatening cow's milk allergy. My parents have helped me to speak up for myself about [...]