I AM MORE THAN MY HEALTH CONDITION
My Choices
I am empowered
because I use and enforce
my right to be a
decision-maker as it
relates to my health and
treatment options.
My Needs
I am empowered because
I have access to resources
and information that help me
identify my needs and figure
out how my care should
address my needs.
My Voice
I am empowered by the
education that patient
organizations like NephCure
provides. This allows my voice
to be amplified and to become
a part of a more significant
change in health outcomes.
My Values
I am empowered because I know health equity means having access to the medical care I deserve. Healthcare should NOT be a privilege for some. All people should receive the same access to care so that we can have healthier individuals and communities.
My Expertise
I am empowered because my
expertise in living with a rare
disease is valuable. I know my
journey is powerful
and has meaning.