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Patient Empowerment Flyer

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I AM MORE THAN MY HEALTH CONDITION

My Choices

I am empowered
because I use and enforce
my right to be a
decision-maker as it
relates to my health and
treatment options.

My Needs

I am empowered because
I have access to resources
and information that help me
identify my needs and figure
out how my care should
address my needs.

My Voice

My Values

I am empowered because I know health equity means having access to the medical care I deserve. Healthcare should NOT be a privilege for some. All people should receive the same access to care so that we can have healthier individuals and communities.

My Expertise

I am empowered because my
expertise in living with a rare
disease is valuable. I know my
journey is powerful
and has meaning.

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Patient Empowerment Flyer

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

The New Landscape | Patient Summit Seminar with Dr. Wadhwani
Video

The New Landscape | Patient Summit Seminar with Dr. Wadhwani

Educational Materials

School Accomodations

ALL RESOURCES

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