Meet Northern California Regional Leader: Kara Jones

Kara and her son, Christian.

Kara Jones is a patient parent in the Bay Area, her son suffers from Nephrotic Syndrome. She has been a dedicated NephCure volunteer for over 10 years, doing everything from supporting newly diagnosed families to creating the Silicon Valley Pig Jig event! You can connect with Kara directly at

What’s your personal connection to NephCure?

I am connected to NephCure as a volunteer — I’m the Northern California Regional Leader and the Co-Chair of the Silicon Valley Pig Jig. I first became involved with NephCure because my son, Christian, was diagnosed with Nephrotic Syndrome in 2002. I started volunteering with the organization in 2009.

Why do you volunteer with NephCure?

I continue to volunteer with NephCure to bring hope to my son and to all those that suffer from protein-spilling kidney diseases. Volunteering has become a great job for me because I feel like I am making a difference. I hope that through my work with NephCure, I will inspire my kids to get involved and work to help others through volunteering.

What projects are you working on right now? How do they make you feel?

Both of my roles (Co-Chair of the Silicon Valley Pig Jig and the Northern California Regional Leader) keep me involved in the community. Volunteering makes me feel engaged, proud, and, at times, stressed… but in a good way!

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