Treatment for Nephrotic Syndrome and FSGS is complex, and managing all of the different aspects of treatment can be stressful. There are different doctors to consult, many tests to schedule, stages to interpret, and instructions relating to your care to understand.

The information in this section is vast.  We hope to provide resources and tools that help you relate, stay organized, and be better prepared throughout your treatment.

Taking Charge of Your Care

Get tips about becoming a self-advocate, ensuring you receive proper care and enlisting the help of others.

Working with Your Nephrologist

Finding a nephrologist who is right for you and fostering a working relationship is vital to you or your loved one’s health.  Click here to find information about choosing a nephrologist, how to prepare for an appointment, what to expect from your team, specific questions to ask your nephrologist and even seeking a second opinion.

Kidney Health Tracking Tools

Our kidney health tracking tools will help you learn more about the importance of compiling Personal Health Records, provide printable resources to help you stay organized and give you links to helpful eMedical tools for your mobile devices.

Tracking Medical Bills and Health Insurance Claims

Get ideas on how to track, manage and organize the mounds of paperwork that come with frequent trips to the doctor, ER, hospitals and the medical bills that trickle in afterwards.