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Celebrate Kidney Month this March 

Every rare kidney disease (RKD) journey is unique, but no one should face the challenge alone. During National Kidney Month, NephCure is uniting patients, families, researchers, and physicians to drive RKD awareness and ensure those at risk or affected by these diseases receive the right education and support. 

Join us in creating a future without RKD.  

Donate now
$11,242
OF OUR $25,000 GOAL
45%
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Donate Today

For 25 years, NephCure has been committed to creating a world where all who are affected by RKD are connected to new and better treatments—and one day, a cure.

As we move toward this milestone, your support can help us continue creating a future where no patient fights alone.  

Your donation powers breakthrough treatments, expert resources, and a supportive community for every rare kidney disease patient.

Together, we can ensure that everyone affected by rare kidney disease has equal access to the care, support, and hope they deserve. 

Will you help us reach our goal of $25,000 for our 25th anniversary? 

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Rare Kidney Disease Education

Behind every rare kidney disease diagnosis is a person, a family, and a story that deserves to be heard. Meet some of the remarkable individuals in our community who are building strength in their journey through resilience and unity. 

Each year, kidney disease kills more people than breast or prostate cancer

It is estimated that there are 150 different types of RKD that can be inherited or acquired with unknown causes

It is estimated that kidney disease affects 37 million people in the United States alone

Low-Sodium Cooking for Kidney Health

Having access to kidney-friendly recipes and resources is important for managing your health and maintaining a balanced diet that supports kidney function! Our free, low-sodium cookbook has dozens of recipes for you to try! Don’t forget to consult your doctor before engaging in a kidney-friendly diet.

Get our cookbook

Focal Segmental Glomerulosclerosis (FSGS)

Zane C.

Zane’s journey with Nephrotic Syndrome began shortly after his first birthday, marked by inexplicable swelling and a cascade of medical consultations. Despite high hopes for remission, initial treatments with high-dose …

Fact Sheet

APOL1 Kidney Disease

African Americans make up 13% of the US population but account for nearly 35% of people with kidney failure in the US. NephCure is here to help change that. We …

Nephrotic Syndrome

Sawyer R.

Sawyer’s journey began at the tender age of 4, marked by distressing symptoms that initially led to a diagnosis of constipation. However, a persistent feeling urged her family to delve …

Informational Documents

Safe Kitchen Choices: A Comprehensive Guide to Non-Toxic Cookware

A kidney-healthy diet is a specific way of eating that helps support your kidney function, and is especially important if you have rare kidney disease (RKD). This diet limits certain things like …

Minimal Change Disease (MCD)

Shelby C.

In 2022, Shelby Chan, who had just turned 17, was diagnosed with biopsy confirmed Nephrotic Syndrome Minimal Change Disease. This was not her first experience navigating the complexity of serious …

Informational Documents

Understanding Primary Nephrotic Syndrome

“NEPHROTIC WHAT..?” Nephrotic syndrome is not a disease, but an umbrella term for the collection of signs and symptoms that occur when the kidney filters (glomeruli) leak protein into the …

C3 Glomerulopathy (C3G)

Chase G.

In 2009, Chase Gallagher, at the age of 8, was diagnosed with Type III MPGN now known as C3G.  Chase’s primary pediatrician originally misdiagnosed him, stating his swollen eyes were …

Fact Sheet

Focal-Segmental-Glomerulosclerosis (FSGS)

Overview and Symptoms: Focal Segmental Glomerulosclerosis (FSGS) is a rare kidney disease characterized by dysfunction in the part of the kidney that filters blood (glomeruli). Only some glomeruli are affected, …

IgA Nephropathy (IgAN)

Anthony P.

Anthony Pisa was officially diagnosed with IGAN at 51 years old through a kidney biopsy completed in August 2019. His condition presented itself during a high blood pressure episode which …

Membranous Nephropathy (MN)

Dan H.

Dan is from Baltimore, MD. Who is living in Florida and served in the US NAVY from 2003 to 2008 as a Special Operations Search and Rescue Veteran that was …

Video

IgAN Patient Empowerment | Sean Converse’s Story

Listen to Sean’s story and his journey with IgA Nephropathy and how patient empowerment has shaped his experience.

Focal Segmental Glomerulosclerosis (FSGS)

Amber H.

When I was eleven years old, I had ongoing swelling that no one could figure out the cause of. Every time we made an appointment to see my pediatrician, the …

Kidney Health Equity Starts Here

NephCure is committed to advancing health equity by empowering Black communities to take charge of their kidney health. Did you know? 1 in 8 African Americans is at risk of a genetic form of kidney disease (caused by the APOL1 gene mutations). Learn more about this particularly aggressive type of kidney disease. 

Learn more

Your Story Matters 

By sharing your experience, you help others feel less alone and contribute to a deeper understanding of rare kidney diseases. 

You can easily record your personal RKD story from the comfort of your home. Whether you’re a patient, caregiver, or family member, your voice matters in our wish to create a future with better treatments and support for rare kidney disease. What to Share: Your diagnosis journey, challenges you’ve faced, moments of triumph, and hopes for the future. Share what you wish others had known, who supported you during your time of need, or what’s given you strength along the way. 

Why We Do What We Do: Hear Joshua’s Story

Meet Joshua Albright, a happy and seemingly-healthy 17-year-old who had just graduated from high school, and on his way to college. His life changed when he was diagnosed with FSGS, a rare and rapidly progressing kidney disease. His future suddenly seemed uncertain. Fortunately, Joshua was able to enroll in a clinical trial for a new FSGS therapy, a reality made possible by NephCure’s ongoing fight for rare kidney disease research.

Get Your Kidney Month 2025 T-Shirt

Show your support for rare kidney disease awareness with our exclusive Kidney Month 2025 T-shirt! Every purchase helps fund better treatments and a brighter future for the RKD community. Together, we can make a difference!

Download the Toolkit

Help us spread awareness this Kidney Month by downloading our toolkit! Share graphics, spread RKD facts, and find out other ways to get involved.

Thank You to Our 2025 Kidney Month Sponsors

We would like to extend our sincere gratitude to our sponsors. Thank you for your commitment and dedication to our cause. 

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Fundraise. Donate. Share. Make an Impact.

Provide Support for RKD Patients

Provides patients and their families affected by rare kidney disease with access to critical resources and educational programs, empowering them to better navigate their diagnosis.

Fund Life-Saving Research

Helps fund cutting-edge research that could lead to a revolution in new treatments, care and hope for a cure.

Advocate for Patient Care

Supports NephCure’s advocacy efforts to improve patient care by providing more clinical trials and community awareness to ensure rare kidney disease patients have access to the treatments they need.

Drive Early Diagnosis

Provides healthcare resources, research opportunities, and access to new treatment options that lead to early diagnosis of RKD, giving patients a better chance to prevent progression and manage their condition.

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