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IgAN Patient Empowerment | Sean Converse’s Story

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Meet Sean Converse, a patient who was diagnosed with IgA Nephropathy (IgAN) in late 2022 after battling an acute upper respiratory illness. IgAN is a rare kidney disease that causes inflammation in the kidney’s filtering units, which can result in kidney damage and may lead to kidney failure. Hear the compelling story of Sean Converse who has navigated the challenges of this condition, all at an incredibly young age.

To learn more about IgAN and see important resources that can support you or a loved one, visit our IgAN Kidney Disease page.

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Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

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Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Low Phosphorus Diet Guidelines: For Patients with Rare Kidney Disease

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

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The History & Innovation of C3G: Patient Summit Seminar with Dr. Corey Cavanaugh

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