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NephCure Community Days
Rare Kidneys Connect Event
Local City Near You, USA
Rare Kidneys Connect: NephCure Community Days are free, in-person gatherings for patients, caregivers, and families living with rare kidney disease. These events are designed to foster real connection and community, offering attendees the opportunity to meet others who understand their experience, hear from trusted physicians and peers, and learn about the resources and programs NephCure offers. Each Community Day is shaped by the needs and culture of its local community, so no two events are exactly alike.
In addition to providing a welcoming environment for learning and sharing, the NephCure Community Day events will also feature a variety of topics including disease education, the latest advancements in treatments, ongoing research endeavors, and access to essential patient resources. Furthermore, participants will gain firsthand perspectives on navigating life with rare kidney diseases.
We extend a warm invitation to individuals impacted by a range of rare kidney diseases including:
- Focal Segmental Glomerulosclerosis (FSGS)
- Nephrotic Syndrome
- IgA Nephropathy (IgAN)
- Membranous Nephropathy (MN)
- Minimal Change Disease (MCD)
- C3 Glomerulonephritis (C3G)/Membranoproliferative Glomerulonephritis (MPGN)
- IgM Nephropathy (IgMN)
Join us as we come together to learn, share, and support one another on our journeys towards improved health and well-being.
Sponsors
We would like to extend our sincere gratitude to our sponsors. Thank you for your commitment and dedication to our cause.
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Volunteer
Discover the power of volunteering with NephCure through our Volunteer Hub, your ultimate destination for all things volunteering. Whether your passion lies in fundraising, advocacy, patient support, event planning, or outreach, there’s a meaningful role waiting for you. Check out our volunteer opportunities and be a part of making a difference.
Advocate
NephCure is committed to advocating for policies that improve the lives of rare kidney disease patients and their families. Learn more about our advocacy efforts and policy priorities, including our support for the New Era Bill and other legislative initiatives aimed at advancing research and access to care. Join the NephCure Action Network and be a voice for change.
