Two New FDA-Approved Treatments for RKD

TRUTAKNA® (atacicept) has been FDA approved for IgAN, click to learn more. FILSPARI® (sparsentan) has also been FDA approved for FSGS and more information is coming soon. Please visit our Patient Navigation tool for support.

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Empowering Students with Kidney Disease

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Empowering Students with Kidney Disease covers educational, developmental, and mental health aspects for families of K-12 students with kidney disease.

Dr. Doyle’s research and advocacy focuses on living with rare and chronic health conditions across the lifespan, with a special interest in emerging adulthood and the transition from pediatric to adult-oriented care.

Visit our Youtube page

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Sparsentan (FILSPARI) for FSGS: FAQs

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

Navigating Nutrition in Protein-Spilling Kidney Disease

Educational Materials

School Accomodations

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