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Cardiovascular Health & Rare Kidney Diseases (RKD)

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Learn about the important connection between cardiovascular health and rare kidney diseases in this educational session. Gain a better understanding of how these conditions are related, why heart health matters, and key considerations for managing your overall well-being. Whether you’re a patient, care partner, or healthcare professional, this session provides valuable information to help you stay informed and engaged in your care.

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Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Sparsentan (FILSPARI) for FSGS: FAQs

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

Navigating Nutrition in Protein-Spilling Kidney Disease

Educational Materials

School Accomodations

ALL RESOURCES

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