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Back To School Webinar

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As the new school year approaches, we understand the unique challenges faced by families in the rare kidney disease community. Watch this empowering and informative “Back to School” webinar designed to equip you with the knowledge and tools to ensure your child receives the support they need.

This NephCure lead town hall consists of a patient parent panel, information regarding 504 plans/IEPs as well as tips on how to request a specialized diet for your RKD youth as they embark upon a new school year.

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Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Sparsentan (FILSPARI) for FSGS: FAQs

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

A First for FSGS Patients: What the sparsentan Approval Means for You

Educational Materials

School Accomodations

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